[Samswife]

Hello everyone. My name is Gretchen. My husband of 12 years began displaying major personality changes 2 months ago. He had severe migraines and extreme sensitivity to heat along with a couple seizures. After multiple scans, blood tests, EEG's and even vascular and cardiac testes, we were told it was merely complex migraines. I still felt they were missing something and pressed the doctors to annoyance. Finally he was told to see a psychiatrist. I took him to one I personally trust who was able to access his CT reports through the hospital database. Her reaction to the reports has left me heartsick. The report clearly states that he has frontal cortal atrophy and a hygromas on the frontal lobe. His neurologist had not even mentioned those findings. We are now in the limbo of waiting on an appointment with a new neurologist. I am simply devastated by the thought of my husband slipping away into dementia. He is just 39, and I never imagined such a thing could be possible

[Darlene]

Gretchen,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways.

There are some following forems for you check into for some assistance:

http://neurotalk.psychcentral.com/forum32.html

http://neurotalk.psychcentral.com/forum92.html

http://neurotalk.psychcentral.com/forum11.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[Samswife]

Thank you for your support. I am spending quite a lot of time crying and researching lately. I suppose being a librarian is finally useful. We are still waiting to get a second opinion, but my casual conversations with friends who are doctors and other medical professionals sound bleak. Pick's disease is a recurring theme in their opinions, and I admit that scares me to death. We are both in our 30's, and I have been in poor health for over two years due to an accident that caused vascular trauma. I am terrified that I will be physically unable to care for him if his condition continues to deteriorate.