Thank you for the suggestions.
In terms of meds, I have been perscribed naproxen, serc, and lyrica. Neither of them affected me negatively or positively in any way, shape or form.

I'm fairly sure that you've mentioned these to be in the past as well. Serc would be for vertigo solely, naproxen is basically prescription Aleve in Canada, and Lyrica (correct me if I'm wrong) was prescribed for Trigeminal Neuralgia in your case?

My GP refuses to prescribe Lyrica - she doesn't think the medication has great results, and I've heard similar reports from others too, though it DOES help some folk.

Have you been on antibiotics or steroids? I seem to recall you mentioned antibiotics before...

The lyrica was perscribed by a doctor in emerg. He told me it was a "nerve blocker" and I believe he said it could help with the pressure in my head (which is the worst of my symptoms). They have not tried steroids yet and I don't believe they've tried antibiotics.

Today we spoke to the ENT that requested the CAT scan because she said she something in regards to my eardrum. She did not say what she saw, per say, but she said she requested the CAT scan to rule out Cholesteatoma or Meniere’s syndrome. When I was reading up on the latter, I notied this comment made:

"Single photon emission computer tomography scanning has been shown to be more sensitive than morphologic imaging techniques, like MR and CT in many conditions."

I can't imagine the day in/day out of your symptoms and understand your frustration with not having an answer.

You didn't seem to indicate that the meds are even helping, so why take them? They should try other options if they don't work. I would still consider talking to them about the steroids. Even a short 5 day course would tell you whether inflammation is even part of the process and it may resolve it vs masking it with pain meds. With all the scans you have had, it's obvious that it's not a structural problem, so that leaves infectious and inflammatory as the biggest possibilities. Even a course of antibiotics would be worth a try.

I wish I had better answers for you.

Over the past few days we contacted Doctor Davids, who was the ENT subbing for the ENT on vacation. She said she saw something in regards to my eardrum that warranted the CT scan. She mentioned cholesteatoma and vascular lesionas her concerns.

I also had a 2nd appointment today with an ENT who specializes in dizziness today. He has refered me to go down to Toronto General Hospital to see another specialist who will perform a caloric using air, because it's will cause less side affects than the caloric test down with water. I'm extremely sensitive in my left ear, especially to cold (even mildy cold) water.

Dr Ballagh also suggested that it's possible that my cerebrial spinal fluid leak never fully healed and that is the cause and/or playing a factor in some of my symptoms. I have to admit, the insanely painful headaches I've been having 24/7 all started after a leak was created from my lumbar puncture done on Dec 11th. The headache never fully went away and on May 3-4th, for some reason started at nearly full force. Sometimes it's so severe it makes me feel very nauseous and completely incapacitate me, making it nearly impossible for me to do anything but lay there with cold compress around my head and neck, for hours. I can't even watch tv, or go to the washroom when it gets that bad.

Sounds like the ENT is trying to get you some relief.

It is possible the LP done in Dec. is leaking again. I have had 8 LP's over the last 16 years and every one required blood patches, so I'm quite familiar with spinal headaches. Typically, you can tell if it's from a CSF leak if the headache subsides when you are laying down and increases when you sit up...because gravity pulls the fluid down and away from the brain.

I personally doubt a CSF leak is the entire cause since the ear troubles/dizzyness were before the LP was even done. But it certainly could explain the headaches.

The Dr. suggested it could be the leak...well, is he or someone else going to check this for you? Let's hope it's not a long wait.

Please keep us posted.