[DeniseStewart]

Hello

I'm not really sure how to use this website, I've just joined today. I was brought here by the MS Society website, and wondered what help and support is available for those of us in Limboland. I have already had my first appointment with the neurologist, who examined me and told me that the exam was fine and that it was benign but he wanted to send me for a scan just to be sure. I am now more confused than ever, not sure whether he meant I'm totally fine, or that I have benign MS. I still have trouble walking, sleeping and moving around, pain and numbness in all four limbs particularly down the left side of my body.

I wonder if any of you out there with MS or pre MS could advise me as to which part of the website would be best for me.

I also have Hashimoto's I've had it for years and we thought that I had ME/CFS several years ago, now the numbness and tingling has started in limbs, MS is on the cards.

Kind Regards
Denise

[Katiebell]

Welcome to Neurotalk! I'm so glad you found this site - you will get so much support here!

The MS forum is found at http://neurotalk.psychcentral.com/forum17.html.

I look forward to reading your posts!

[DeniseStewart]

Hi Katie

Thank you
See you there

[D0ct0rT]

Hello Neicy. Welcome to this site

[MelodyL]

Originally Posted by DeniseStewart

Hello

I'm not really sure how to use this website, I've just joined today. I was brought here by the MS Society website, and wondered what help and support is available for those of us in Limboland. I have already had my first appointment with the neurologist, who examined me and told me that the exam was fine and that it was benign but he wanted to send me for a scan just to be sure. I am now more confused than ever, not sure whether he meant I'm totally fine, or that I have benign MS. I still have trouble walking, sleeping and moving around, pain and numbness in all four limbs particularly down the left side of my body.

I wonder if any of you out there with MS or pre MS could advise me as to which part of the website would be best for me.

I also have Hashimoto's I've had it for years and we thought that I had ME/CFS several years ago, now the numbness and tingling has started in limbs, MS is on the cards.

Kind Regards
Denise

Hi Denise:

Just wanted to extend a hearty welcome to you.

I see you have been directed to the right forum.

Again, Glad you have joined us.

Take care

Melody

Welcome to the forums!

I'm so glad you got redirected here. My psychiatrist sent me --one of his best prescriptions.

I've only been here since June, but I've found so much support, education, nurturing...just can't tell you what a family of a special kind it's become. I wish the same blessing for you.

Folks here offer generously, from the heart & gut, often out of pain, to put you steps ahead of where they started when that is possible. Some things, of course, we have to experience for ourselves; but here there will be someone to hold our hands thru-out it. We are alone, yet not completely. Someone else has been there. Someone else understands, really. Someone else cares.

If anything helps, this place--these people--can. & do, & have--have made the difference--for me.

So again, Denise, welcome. If I can do anything, let me know.

[NurseNancy]

hi denise and welcome to NT,

i don't know what hashimoto's is but look around the forums and see if something seems to fit.

you can post an intro on the MS forum and you'll get lots of help and support.
write down your Q's so when you see the dr you can ask that specific Q. write down the answer. bring a friend or family member if possible as a 2nd set of ears.

also, start collecting copies of your records and mri's in case you see another dr. that will be important. when i see a new specialist i ask for a copy of the dr's dictation. it will be very helpful and you will learn a lot.

MS can take some time to dx (diagnose). it's a process of elimination sometimes. if your neuro exam is normal and you have no lesions on an mri your dr will likely want to watch you. keep a sx (symptom) journal with dates and the sx's you have.

begin to do some reading and research on MS and slowly you'll learn a lot and have a better understanding of the disease and what's needed to dx it.
hope this helps.

[catskill]

Hello
I am here in NJ and am trying to find some answers on if there is any difference in switching from brand dilantin to generic aqlso long term effects of dilantin mainly nerve damage Thankyou Catskill

[Darlene]

Denise & Catskill

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here, just let us know how we can assist you. Our shoulders are here for support in many ways. You see we are supportive and relaxed place to be.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene