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Old 10-11-2011, 10:24 AM #1
brideyanne brideyanne is offline
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Join Date: Oct 2011
Posts: 3
10 yr Member
brideyanne brideyanne is offline
New Member
 
Join Date: Oct 2011
Posts: 3
10 yr Member
Default Post Concussion Syndrome - multiple TBIs - what works?

13 year old daughter received multiple concussions in soccer tournament 7 months ago. Only 34 % short term memory, can attend school only 4 hours. Chronic headached/migraine intractable level 5 out of 10 daily, does not respond to prescription treatment. Did DHe IV therapy, magnesium sulfate, and botox 5 day hospital stay month number 6, not very successful. Also has P.O.T. syndrome as a result of T.B.I. Also lost or damaged sense of smell and taste.

Tried Biofeedback. Tried chiropractor. Did Physical therapy for verstibular therapy and then neck therapy.

On elavil 6 months, beta blocker nadalol (to treat migraine and POTS), zanaflex. She has been a walking pharmacy as described by one neurologist. On neurolgist # 3, happy with this one. Waiting list for intensive cardiologist run POTS program here. In Dallas Texas, where can we go?

Looking into Cranial Sacral Therapy, accupuncture, neurotherapy. Also looking at Mayo Clinic, And Mary Free Bed Rehabilitation hospital. Any insight suggestions?

Thanks, new to site.
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