[Jacobc98225]

Hey my name is Jacob just saying hello. I've had MG for four years and had a thyamectomy around the time I was diagnosed, which really hasn't helped my symptoms. I was diagnosed at age 21, so I'm young for MG. My symptoms affect my speech (noone can understand me usually lol), chewing, swallowing, walking and balance, overall fatigue, and that great double vision! gotta love that sideways eye. I've been hospitalized twice a few years ago for crisis where I stopped breathing. So my symptoms have been getting worse as of late, not crisis bad, but not good. I've been getting IvIg for about a year and a half every other week, which had been maintaining my symptoms at a managable level. Now my doctor is starting me on plasmapherisis instead of the IvIg. I'm going tomarrow morning to get the port or cath set, not sure where or what they are putting in me but I'm game. Had the pherisis a couple of times before the thyamectomy, and it helped alot, so maybe getting it every other week is the key. Just don't want any port or anything so I'm bummed out. so yup thats me.