sounds like polyneuropathy to me I would get a second opinion because if it is its painfull and you will need help. Best of luck

I know it sounds like neuropathy to me also even though the docs are saying its not. Thankfully, Im not in much discomfort but my mind can only wonder what is happening and sometimes I think the worst. I have seen a few neuro docs who have done a few emgs, but so far nothing detected. With my legs and feet and hands and other symptoms making me feel the way I do, I will continue to search for answers. Thanks for your support.

AP

Hi, your story sounds very familiar to me! I started tingling in my arms nearly 4 months ago now which has spread ALL over my body including my toungue roof of my mouth and into my throat. Sometimes it is a stabbing pain sometimes freezing never totally goes at best it just kinda hums/buzzes. I'm in the process of waiting to see a neurologist the NHS system here means I have to wait 2 months as there is a waiting list. My doctor has run some bloods which I get the results from on Wednesday.
How are things going for you, any answers yet? Has your doctor diagnosed periferal neuropathy? No one can explain my toungue tingling - sometimes I think they think I'm making it all up and am a bit bonkers!
I am on Gabapentin 3x daily which helps a little especially at night when its at its worst.
I hope you get some answers, keep me posted I'd be really interested to see how things go for you.
lgr6616 xx

Hey people! What's up.I've posted on here before fearing i have ms Hey..maybe i do,i just wanna discuss my symptoms, again Here they are: one area just below my shoulder blade on my back has been on and of, going numb, feeling like it's Dry or something, yet super sensitive to my shirt touching it, or sometimes a crawling sensation I get these strange goosebumpLESS chills in my legs and arms Very very faint pins and needless feelings in my fingers at times, very faint! Shooting pains up my right leg, with no apparent cause, they come and go I will admit i have anxiety and I've read it can do some crazy stuff to your body I get the heart drop feeling when somebody scares you Thats follwed by a kind of fight or flight response that shoots down my arms.happens for no reason I am fearful i have ms..i know something is definatly wrong with my nerves When i pick my shoulders up, like in a shrugging manner, up to my ears and let them drop,i get what feels like my nerves jumping in my ring and pinky fingers!! Yuck, this is ask so strange.i get the random buzzes and faint electric zaps, wherever and whenever. I'd like somebody to point me in the direction of what could possibly be wrong with my nerves! Please! I'm a 20 year young male with no family history of MS. Does ANYBODY knpw what im going through!?!?!?!?!

Hi LG...nothing yet. Actually I am waiting for my lumber puncture appt. Though Im not sure I really want to do it since the docs so far havent found any evidence to suggest a need. The last doc told me he doesnt expect to finD anything, so Im not too sure I will get it. Problems is, symptoms persist with no answer to why. I really dont know what to do...I feel so nasty during the day...and my feet and legs are feeling like they are deteriorating, though thankfully I can walk. Sorry to hear about your issues and trust me I have twitched and tingled any/everywhere over the last year. I take cymbalt 30mg...not sure how much it really helps but thanks so far Im not in excruciating pain. Please hang in there and drop me a line.

AP

Hi all, I hope everyone has been feeling at least decent since my last visit/post. An update is this: Had a few more MRI's done last week. Entire back...lower, middle, neck. Then had another NCS/EMG. Doctor wants me to get ton of new bloods done...will be doing this week. Meantime, he said the emg etc. looked totally normal. He said the MRI's werent too worrisome, saw a little disc issue..but said nothing that warranted an immediate call to get me to a surgeon. Said he wants to see me back in 3 weeks to go over all tests..said I am still basically a mystery case.

When I meet with him, I want to compare all my MRI's to see if they look exactly the same or if there is degeneration occuring..what are your thoughts?

Great to see you have come back to be with us. Please keep us up to date with your condition.

Hi..Thanks for reading and I know you are not bonkers! How is the gaba treating you these days? Tingling sucks...slightly more pleasant than pain though...thats for sure.

Just as an update, I am scheduled for my spinal tap on the 20th of this month...really curious to see what it shows...will keep you updated. Have you had a tap done?

... sometimes it can help just a little to know that! I had burning, tingling, numbness spread over my entire body within a couple months, my tongue, gums, palate, throat too. You have peripheral nerves everywhere, really. I think the facial symptoms I have involve the trigeminal nerve. Mine symptoms are likely from a virus I had. Make sure when you have blood work they test for viral conditions and autoimmune, too. I'm so sorry you are unwell. When mine first started I was panicked because it was so unusual and progressing. I had never felt anything like it in my life. Then, to have it suggested you're stressed out and that's what's causing your symptoms only makes you angry on top of everything, wondering if you're getting proper care for a progressive condition because doctors just think you need to "take a pill" and calm down.
Blessings for comfort

Heb, thanks for the note..yes...evry doctor I saw told me that i was anxious, worried, etc..BS...i admit i was panicked but we know that it feels like ants crawling, tingling everywhere, twitching like crazy, hot one minute, cold the next, hungry, in fact starving every morning...oh my god, i dont think there was a sensation that i didnt have...mucchhh worse then, so I know wha you mean. Hang in there cousin and drop me a line.