Hi everyone!

I'm a newly diagnosed Trigeminal Neuralgia patient (I think I am Atypical TN).

I just wanted to touch base with other people with TN and try and get my head around the whole thing

I have had a constant headache for almost 2 weeks now which nothing seems to touch, have had excrutiating TN attacks in my left maxillary sinus which I ended up in the emergency room with (after being told at a private clinic it was a migraine -grr!) and luckily saw a doctor who knew TN when she saw it. Have been on Tegretol for nearly 2 weeks, it has lessened the severity and the frequency of the attacks however I still have that headache as well as sometimes ear ache and jaw ache too. I can but hope that maybe increasing the Tegretol will eventually take that away (though it taking away attacks is brilliant)

Today I found it painful to wash my hair and to wear glasses (luckily I can see okay without them), also to put eyeliner on (can't live without that!). Though I have seen online already many people who can do far less than that so I guess I am lucky in some respects!

Would love to hear from other TN patients.

Welcome to NT!

I'm so sorry you are battling this. You've sure found the right place for wonderful support and understanding tho! I see you've already found your way to the TN forum. As you can see, you certainly are not alone. The TN forum is full of wonderful people who know exactly what you are going thru.

Make yourself at home Porcelina. It's great to have you here!

Caring,
Rae

Porcelina,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help. There are great number and caring fellow members here, you will see we are supportive and relaxing place. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene