Hi Cristina,

So sorry for what you're going through. Did they check your potassium levels while you were weak? Have you read about periodic paralysis? I know a lot of people with that disorder who have a very similar hospital story as yours. I'm not saying you don't have MG or you do have that, just wanted to make sure you are familiar with it just in case.

Tatia

Hi Tatia thanks for your support; i'm glad to hear i'm not alone and there are a lot of people with similar stories like mine.
No doctors didn't check my blood potassium; i talked about hypokalemic paralisys because it can be associated with MG and the features of this illness are quite similar to my symptoms during those crisis.
then the crisis can be also MG crisis because i had difficult in breathing too but even hypokalemic crisis has this characteristic so it's difficult to know if i had one or another because of lack of tests like blood test or EMG during these crisis.
I think doctors didn't do any kind of test because they thought since beginning it was a psychiatric disorder catatonic one so biased against me having so a really wrong behaviour.
Cristina

Christina,

I just wanted to let you know your not alone with this condition. While I can't say I've been treated as badly as you, I was sent to several psychologists and psychiatrists before being diagnosed with MG. I first started getting symptoms at college and after the third trip to the medical center, I was told I needed to see a psychologist before they'd treat me further. The first psychologist ascribed all my symptoms to loneliness and put me in a group therapy for learning how to make friends. My reaction was that my lack of friends was due to the fact that I could barely sit up and I had actual problems and didn't need to listen to people whine about their boy/girlfirends (in hindsight everyone there had problems, point is that I should never have been there).

After that, they sent me to a neuro-psychiatrist who should have looked for a neuro problem, but decided that my tiredness and weakness was due to depression. Problem is SSRI meds make my myasthenia worse, so he ended up making me worse.

Eventually, I did get an arthritis diagnosis for the physical problems, but my eye issues and tiredness were still dealt with as psych issues. It literally took a breathing issue during a surgery before they realized I had MG and all the things I'd been complaining about were real.

Hopefully you have a case against the hospital for your poor treatment. I just wanted to let you know you weren't alone with having trouble being diagnosed.

Best advice is to keep seeking a doctor till you find one that listens to you. To be labeled as Munchhausen without a proper work up


I agree with everyone......

To the doctor who isn´t able to stay neutral during the diagnostic process I say:

´I´m about as likely to accept a psychosomatic diagnosis from you as you would accept a diagnosis for cancer from another doctor without any positive blood tests!!!
So come on then....give me the darned Munchausen test, where is it then?!!!!......

Stay strong and good luck

Hi Anacrusis,
your reply is very interesting; your words are just those I should have told to that negligent doctor.
Thank you very much to you and to everyone who replied to me for your replies.
I want to make all you know that by now i will post only in the specific MG forum. So see you soon there.
Bye
Cristina