[mothereagle]

Hi,I am new to this forum. I had surgery in September of 2011 for Chiari Malformation1. I am having a rough time getting doctors to understand my post op pain. I have days I hurt from the back of my head to the middle of my back. I have days where I can't feel my feet and hands. The headaches are terrible. Somedays I have what I call "jelly" spells. I can't coordinate my body. It is as if my brain is sending the signal as to what to do and it just isn't getting to my arms and legs. My husband has to help me to the bed. I can't go out in public for the fear of having one of these spells. Would just like to know if there is anyone else out there having the same or maybe similiar symptoms. I have been trying to contact my neurologist but to no avail. It is so hard to get them to call me back. Please help....I apprciate it and God bless everyone.

[Rrae]

Welcome to NT!

I'm so sorry about these awful symptoms you are having.
You've come to a wonderful place of support and understanding. Here, you can share with people who really understand and care.

Here's the link to the Chiari Malformation forum:

http://neurotalk.psychcentral.com/fo...aysprune=&f=71

Make yourself right at home. This is a very down-to-earth place.
It's nice to have you!

Caring,
Rae

[Darlene]

mothereagle,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Sorry to hear of the pain you are going through. Rae gave you good place of fellow members to assist you.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene