hello im new to this and thought i might share my story to see if i could get any help. I currently have a CSF leak going on now for about 1 year and 3 months.
It all started when i was in the hospital giving birth to my daughter. I came home from the hospital and thats when it started. I had no idea what was going on my neck hurt and had the worst headache it was like no other headache as they describe it. i called the hospital and they told me to drink caffeine lots of it. A couple of days went by and i couldnt take it anymore i couldnt even eat. so i said im calling my obgyn. He told me i needed a blood patch go right down to the hopsital and i will be good as new.HAHA.......ya good as new for 1 day then the headaches came back. I checked myself back in the ER they gave me all kinds of tests MRI CT Scans, and medicine. i have got 2 blood patches so far, CT Myleogram. Which that didnt show where the leak was coming from. It got me upset frustrated because i thought that would be the key to ending this pain Im having. i have been doctor to doctor neuro to neuro and everybody seems like they are just brushing me off. They dont return my phone calls. im just hopeless and dont really know where to turn to anymore. i just want to be myself again and take care of my 2 kids the way it should be. i Just want to know if anyone has the same problem i do if they have cured it somehow what they have done to make it better

I also have tried accupuncture,massages, you name it i tried it. Just doesnt seem to be helping. Coffee is really the only thing that helps me for a couple hours oh and advil but i try not to take much of that seeing i was taking it for about a month straight.

Hi, and welcome to the community! Sorry you've been through such an ordeal. If you haven't found it yet, this forum might be of help:

http://neurotalk.psychcentral.com/forum78.html

But feel free to jump in anywhere! We're all friendly.

lycb,
Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

You are not alone..one year ago I had an epidural for back pain, immediately had headache, nausea and severe pain. After three weeks in hospital three blood patches, of which the first was successful for 24 hours, I have been to headache specialist, neurosurgeon of some note at Cedars Sinai...and still one year later have daily, delibiltating headaches.. Had a double blood patch three weeks ago with no success. Dr. said either you have a leak and we can't find it or you don't. I must say I was frustrated. I have myleograms, cts, etc. but all appear normal. When I am prone the headaches are better but not totally gone. The sofa is my friend..but I am tired would love an answer, if it is a leak, what is the definitive test before you just give up.... August 4, 2012 one year, without a headache except for 24 hours after first blood patch. I truly feel you pain.