Welcome to neuro talk. Just posting like you did is great. I hope alot of others come by to say hi and greet you. This is a great site with alot of compassionate people. I have been here two years. Never left, as I did find an extended family. I hope you make some friends.
I am not sure what the letters stood for with the condition your grandson has. Others will though and will guide you. Up at the top there is a "search" bar. Click on that, and type in the letters you used for the condition. It will bring you to that forum. I am sorry your family is going through a medical issue. Someone on this site will know alot more than I do. I just wanted you to know you found some good people, that will try to help you. Write anything you want, with any questions or concerns you have. NT will try to get you in the right direction. ginnie