Hi there
My name is Liz(nickname Biz) and I live in NZ. Im 52yrs old. 30 years ago I had a major car accident where I fractured my pelvis, spine and also herniated a disc. Two years later, I then had failed surgery on the disc (L5/ S1 ) due to scar tissue around the nerve that has permanently damaged the nerve. So I just had to accept this and live with the pain which has severely disabled my life in all that I do, but I had to accept it. A year ago, I slouched on a chair and received more new terrible pain that has not gone away, down my leg and in my spine. I only found out today after further tests that this is probably due to the fact that my spinal fusion never fused and that I have what is called a "non-union fusion" or pseudoarthrosis. Its basically a break in my bone that I have been living with for all this time(due to the operation not working) and now that I have put pressure on the broken joint, it has become much worse.
I have been suicidal with pain and have been ignored so many times. My social life is destoyed, my family life hindered. WHats worse a year ago my husband and I lost our house in a severe Earthquake in our city. My anger is beyond anger and now the new doctor says he MAY be able to help the pain with another operation, but he cant help the nerve damage pain. I am so confused and have searched for info on the internet and cant find it. Does anyone know of this condition, does anyone live with it and do they find anything helpful? Did they have another operation to fix it?
Many thanks
Liz (or Biz)

Hi Biz/Liz and welcome to NeuroTalk. I am so sorry to hear of your terrible pain. There are several forums here that would be of interest to you.
This is our Spinal Disorder Forum...http://neurotalk.psychcentral.com/forum22.html

And here is another link for you...http://neurotalk.psychcentral.com/forum118.html

These forums are great for sharing information and finding support. I'm glad you've joined us...sorry for the reason.

Dear Biz I feel for you you and your family have suffered tremendously. Your story touched my heart and I will keep you in my prayers.

Liz,

Hello and welcome each of you to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

I am so sorry for your pain. The little I have been through has given me a peek at what chronic pain is like. Please do not despair and know you are not alone.