And WELCOME to NT!

I'm so sorry about your accident and the RSD setting in
It is a very frustrating condition to battle, I know.
You've found a great place for support and understanding.
I felt very alone with my battle with PN/RSD and it was hard to find people to talk to about the SCS when I was getting mine.
Thank God for this place!

I'm sorry about the troubles you've been having with the SCS. We have a forum here specific to SCS discussion. Here's the link to take you there if you want to talk with others. There's lots of support there!

http://neurotalk.psychcentral.com/fo...prune=-1&f=118

Also, check out the RSD forum! It's amazing how many people suffer this unfortunate condition. Many caring folks who can embrace what you've been going thru.

http://neurotalk.psychcentral.com/fo...sprune=-1&f=21

Caring,
Rae

My story is much more simple than yours and I am sorry for your ongoing frustration. My RSD is in my left foot so my leads are in my back. L2 and L3 I think. After multiple LSB injections it was decided that they were effective enough but not long lasting. So I was a good candidate for SCS. My trial lasted 6 days and it made so much difference that I had the permanent one implanted within the week. It takes a lot of work with your rep to get the right programming for you. Somedays I need one program and some days I need a different one. And then you still need to adjust the intensity. I think that I have seven different programs at this time. But I do meet with my rep every 6-12 mos for programming changes. As the scar tissues forms and your body adjusts your programs need changed. Don't hesitate to set up a regular appt with your rep. Keep notes of how your programs are working for you. If you can tell him what works and what doesn't he can make improvements for you.

I know it ks frustrating right now but the potential to drastically reduce your pain is within your reach. Keep working at it until it meets your needs.

Good Luck!

bballsweetie,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene