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Old 07-16-2014, 10:51 PM #1
Oldmyakka Oldmyakka is offline
Newly Joined
 
Join Date: Jul 2014
Location: Southern Alabama
Posts: 1
8 yr Member
Oldmyakka Oldmyakka is offline
Newly Joined
 
Join Date: Jul 2014
Location: Southern Alabama
Posts: 1
8 yr Member
Talking It's hot in southern Alabama!

New here. My support group is my children and it's time to expand my horizons from isolated rural Alabama
I have juvenile severe scoliosis and kyphosis with the expected osteoarthritis. I was not diagnosed until I was too old for treatment. I lived a very active life with joining in all the typical and non typical sports while "working through the pain". No pain would stop my activities until I reached my late 40's. Progressively, my pain became debilitating. I started with conservative ESI's until they didn't work anymore. My fist lam/fusion was 3yrs ago and my second was in January...now fused S1-L1. This was all for pain reduction and to maintain ambulation.

Well the acute pain from pinched spinal nerves DJD, DDD, stenosis and fractured vertebrae has gone. BUT, now there is new pain. Standing, sitting and walking results in terrible back ache from my ribs to my pelvis. I'm good for an hour or two in the morning and can actually walk. It's downhill from there and I end up on my back until the next morning. I feel like I have NO core strength at all. So I struggle between trying to push myself....resulting in more pain and not doing anything... and weakening my muscles. Oh, I also have no balance, as I am fused crooked and can't wiggle my spine anymore when off balance. So I fall.
Well, I'm rambling. I know there are lots of people suffering from back and leg pain. I would love to meet some scoliosis pain people. I guess I never realized I had such a severe spinal deformity, but boy do I! Like most of us, I'm also struggling with the complete change in the quality of my life.
Oh, I'm a bipolar also.
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