New here. My support group is my children and it's time to expand my horizons from isolated rural Alabama
I have juvenile severe scoliosis and kyphosis with the expected osteoarthritis. I was not diagnosed until I was too old for treatment. I lived a very active life with joining in all the typical and non typical sports while "working through the pain". No pain would stop my activities until I reached my late 40's. Progressively, my pain became debilitating. I started with conservative ESI's until they didn't work anymore. My fist lam/fusion was 3yrs ago and my second was in January...now fused S1-L1. This was all for pain reduction and to maintain ambulation.

Well the acute pain from pinched spinal nerves DJD, DDD, stenosis and fractured vertebrae has gone. BUT, now there is new pain. Standing, sitting and walking results in terrible back ache from my ribs to my pelvis. I'm good for an hour or two in the morning and can actually walk. It's downhill from there and I end up on my back until the next morning. I feel like I have NO core strength at all. So I struggle between trying to push myself....resulting in more pain and not doing anything... and weakening my muscles. Oh, I also have no balance, as I am fused crooked and can't wiggle my spine anymore when off balance. So I fall.
Well, I'm rambling. I know there are lots of people suffering from back and leg pain. I would love to meet some scoliosis pain people. I guess I never realized I had such a severe spinal deformity, but boy do I! Like most of us, I'm also struggling with the complete change in the quality of my life.
Oh, I'm a bipolar also.

Oldmyakka,

It is great to have you come and be with us. As you can tell there a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Click on the following there will be someone there to help you out.

Spinal Disorders & Back Pain:
http://neurotalk.psychcentral.com/forum22.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

I'm located in West Georgia.....right on the good ole Alabama line and yes.....it's very hot here too

I have small fiber neuropathy that started in my feet but has progressed up my legs, now in both hands and upper right arm.

Just wanted to say I understand the physical pain and the frustration of losing the life I had at 51....that was just last year. I see a long and painful journey in front of me but will do everything I can to have some quality of life back.

Take care and glad you've come 'aboard'. Welcome to NT and all the wonderful information the posters have to give. This is a pretty special group of people

Debi from Georgia

Welcome Oldmyakka.

Welcome to the forum. Many folks are around who have spinal issues. You will make some friends here too. I live near a town called Myakka in Florida!
Ginnie

Hi Oldmyakka! Welcome!

Hello Oldmyakka,

I just wanted to welcome you to the NeuroTalk Support Groups
and to add on the links to our
Chronic Pain Forum
Bipolar Disorder Forum

take care...

Just wanted to say welcome!!! I am sorry you are in so much pain! I have degenerative disc in my pelvis so I have some back pain but nothing close. I hope you find some company and comfort on here. I am new my self. I hate the humid hot summers here and my hair looks like a lion's mane its so frizzy. lol