Hello, I was wondering if anyone has been diagnosed with an undifferentiated tissue disease and are experiencing nueropathy symptoms? Being going through this on and off for ten years. Have had every test, including two skin biopsies for SFN. All came back normal. Experiencing burning, tingling, creepy crawling and slight loss of hot/cold sensation in hands and feet. Rhemo tells me to go to Nuero and Nuero tells me to go to Rhemo. Been to dozens. Has anyone with UTD and neuropathy have any successful treatment plans? Thanks

bernadettemarie,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

--though I'm sorry about what is bringing you here.

Neuropathy, unfortunately, is a common secondary results of many types of autoimmune collagen/connective tissue/vascular autoimmunities (almost any of the conditions associated with variants of the anti-nuclear antibody, or ANA). It can occur both as a result of direct compression on nerves from the tissue changes and through autoimmune mechanisms as well.

I would come on over to the Neuropathy forum here, if you haven't already--lots of information and empathy:

http://neurotalk.psychcentral.com/forum20.html

Also, this is the link to the Washington University Neuromuscular database, which has lots of information on many types of neuropathy--I've linked specifically here to the collagen/vascular/ANA section:


http://neuromuscular.wustl.edu/antib...x.html#vascgen

Hello, and welcome to NueroTalk. We're so glad you found us!

There are many friendly, caring, and helpful people on the boards.