Hi,

I have been diagnosed with RSD and have been taking 300mg pills of neurontin. One in the morning one at night. It helped with the pain but it increased my anxiety by alot. I switched to a loser dosage of 100mg that I am taking 3 times a day. The dosage is not enough for my pain. I was told by a friend that if I take two pills at a time here and there to up the dosage it should be fine. I just wanted to see if anyone has any advice on this it doenst seem smart to me to double up but Ive been told by a few people its ok....thoughts? I appreciate it thank u !

First off I wanted to welcome you to Neuro Talk!! Your question about Neurontin...Neurontin is not a drug that should be jumped around with dosage. You really should pose this question with the doc who prescribed it. If he feels its okay then do ask he prescribes. I too take Neurontin and it does talk a while to get use to. Please stay in touch and update us on what your doctor says. I have posted a link to our RSD forum...you should find support-full folks wherever you go here on NT....take care!!!

http://neurotalk.psychcentral.com/forum21.html

Welcome to NeuroTalk! We are so glad you found us!

I also took Neurontin for nerve pain. My neuro instructed me to carefully wean myself off by one pill a week. It's not something you want to mess with the dosages with. It can cause serious problems.

SammyJay,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Personally, I hated Neurontin. It made me retain water, made me loopy, and made my ankles swell. My doc switched me to TOPAMAX and low and behold, I didn't retain water, I lost weight, ALL MY PAIN WAS GONE -- AND I MEAN all of it, and I was only on 400mg per day. And I'm STILL on 400mg per day years later and it still is working. No burning, no tingling, no zapping, etc. And I had a lot of nerve damage too. I have NO side effects from Topamax, but of course that's just me. Others might have some.

You might ask your doc about this drug and see what he says. Best of luck annd God bless. Hugs, Lee

I have also taken Neurontin before, and even though it kicked my butt it sure did its job at the time. However, I echo everone's thought on the matter it is best to just bring this up to your doctor instead of changing the dosis yourself.

What may happen, which is what happened to me at a specific moment, was that I was taking Neurontin but the pain was quite severe - it felt like it wasn't doing anything for me - so from taking it once a day he ordered twice a day, and also prescribed Sirdalud at night. Even though Neurontin does make me super drowsy and whatnot, when my anxiety goes sky high my doctor already knows to prescribe something else to assist the situation.

As some other friendly voices around here have said, best thing to do is to give your call a doctor right away to let him know, worst case scenario he'd tell you to drop by his office to talk in person.

Welcome to Neuro Talk. You will find alot of people willing to respond. Neurontin is not a med. to mess with. It can do all kinds of things if you should change your dose. Most folks have to wean down from high doses. Also the anxiety can be a problem for some. It was for me, and I also got very depressed. I can't take the medication. Please seek a medical professional to discuss this. ginnie

Hi,

I do have experience with Neuontin.

My favorite doctor called it "rotten Neurontin" and I come to find that to be true. He would not write it. I had other doctors who would write it.

Doctors either like or hate it.

As a patient, it did help my symptoms more than any one drug they could give me, but the side effects were not good.

It does not do me any good to live a day and not remember what I did... oh, I wonder what did I do on many of those days... #scary.

There's always a trade, my friend. Not necessarily a fair trade. Not one I wanted to have to bargin for. It's my cross to bear, as is yours.

Understanding and finding comfort... as the pre-this-condition-has-changed-me-dramatically kind of postion many find themselves in.

I do write down "Notes," Things to do" lists. Sometimes I forget the list, but I can make it without it. Life keeps coming at ya.

Hang in there. You have to do what you have to do to get through this period. My pain pattern did change, with the changes I undertook and tried. I learned to grade things as positive or negative. So, things that were positive, I did. Negative; tried to quit those things. Can't seemm to shake the Pepsi and sugar intake, and a few more negative things I'm doing.

I hope and pray you find some comfort today...