Welcome to Neuro talk. You will find some compassion and maybe a few ideas here. If you are that much in pain, and your doctors are not finding out why, I would go to the ER for sure.Also if you post your location area, there may be others here on NT, who could direct you to a physician who would care enough to look into why this is happening to you. Try a physiatrist, this is a special kind of doctor for pain, but they also work at a cellular level. They do all pain specialist do, but go at it from a different angle. Keep in touch. I care. ginnie