[Leafs51]

Hello. Has anyone have any relief from peripheral neuropathy besides taking neurontin? Also, does anyone have success with neurontin with limited problems? This is such a terrible disease, I can feel your pains and you have my sympathy.

[mrsD]

Welcome to NeuroTalk:

This is a huge question. There are over 100 causes of PN.

Please visit our forum, and make an introductory post, with some of your details, medical history, drug use, vaccines, diet, activities.

http://neurotalk.psychcentral.com/forum20.html
There is a subforum at that link and many many posts from people over the past 6 years, and also informational posts from me to help people deal with the various PNs. There is no way around doing some homework.

[Leafs51]

New PN member. I had a nerve test done on my feet and was told that i have PN!! It is a terrible disease and so far have not had too much relief except for taking 600mg. neurontin (gabapentin) 3 to 4 times a day. But i am concerned with the problems associated with neurontin???? I am trying to stay with 1800mg. a day with 20mg oxycontin twice a day to help with the pain!!! I have taken as much as 4 neurontins a day but still had pain starting at night. I was told to take 2 at night and another during the day but the tired sideeffect of the drug is hard to take! When the pain comes on i need at least 40mg. of oxy to take away the pain. I have been on neurontin for the last 2 months with the original doseage of 2 600mg. at bedtime? Then i was told to go to another pill in the morning. This worked with no pain until after 6pm, then the pain slowly started to come on, pain at times mimicking gout symptoms??? I originally for a few years thought that i had gout, because of the pain in my right and left toe joints. The pain was sometimes only one foot and sometimes both feet? Then i started getting pain and numbness in my small toes, which caused me to seek a foot Dr. where i had the nerve test. Even now i still get the same pains in the large toe joints and sometimes in the small toes??? But when the pain is in the large toe ball joint then it is unbearable at times where only the oxy works, it throbs with pain. These problems are usually when i am either sitting or laying down, when i walk the pain subsides or gets weaker, probably because my mind is away from the pain as when i am sitting or being still. The neurontin seems to work at higher doses but i am concerned about the side effects as the clumsiness and emotional issues it sometimes creates? I read that it can cause suisidal thoughts?? I suppose any drug that effects the nerves will cause problems. The max amount of oxy that i have taken over a day is 20mg. three times during the day, this is at the worse case when i had pain in both toes and intense throbbing. This usually happens when the barametric pressure drops well below 30???? I have been monitoring the corelation with barametric pressure and pain. There is definitely something between the two.Well i am so thankful to find this support group.

[mrsD]

You need to visit our Peripheral Neuropathy forum... I gave you the link on your other post. See you there.

We need details, when you do it. There are over 100 causes of PN...you need to tell us more about yourself. Not just your pain details, your medical history too.

[ginnie]

Welcome to Neuro Talk. I will be in the forum for PN as well. I have it in my left foot, ankle and toes. Lots of support right here, and maybe a new idea or two to help. You arn't alone. Glad you found us. Again welcome. ginnie

[Leafs51]

Originally Posted by mrsD

You need to visit our Peripheral Neuropathy forum... I gave you the link on your other post. See you there.

We need details, when you do it. There are over 100 causes of PN...you need to tell us more about yourself. Not just your pain details, your medical history too.

Thank you for your help and support.

[Rrae]

Welcome to NT!

Oh how my heart goes out to you, as PN has been my nightmare for 7yrs!
MrsD gave you the link to the PN forum, which is LOADED with great info.
Once I became more familiar with it's tactics and causes, it became a bit less of a nightmare.....and there ARE ways to combat it - so, don't lose hope!

You've come to a wonderful forum, full of support and understanding.
Glad to have you!

Caring,
Rae

[Darlene]

Leafs51,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.