Hello. I am a 63 year old woman. I had a cerebral aneurysm repaired in 2011. Since then I had 1 TIA and 1 small CVA., with no residual effects or disability. I have developed neuropathy over the last year, as well as leucocytoclastic vasculitis. I am being fallowed by a rheumotologist, have had numerous blood tests, MRI Ct scans. I took Neurontin for the intense burning pain all over. It was getting worse week by week. I took 300 mg 3 times daily and 600 mg at night. I have now started Lyrica, hope that will help better. EMG on arms was negative. I have numbness in feet and hands, and also now in gums. I beleave it is small fiber neuropathy.
But the doctors has not been able to find the reason for the burning neuropathy. I had blood test for Sjogrens twice ( the neurologist says the blood test is false negative 4 out of 10 times) I had negative lip biopsy.
I think it is related to vasculitis. It has now taken 6 months, I go from doctor to doctor. I have tremorus feeling inside. In the evening I am exhausted and tremors inside increase as the burning all over increases. It feels like the doctors are not listening. Any suggestion?