[ChiariGirl84]

Hello All!
I am new to the group and would like to get to know you all better.

I am 28 years old, and have multiple health issues. I was diagnosed with MS 3 years ago, Arnold Chiari Malformation 2 years ago, Ankylosing Spondylitis 5 years ago along with Cervical Spondylosis, fused vertebra from the SI Joint to the lumbar spine, degenerative disc disease, osteoporosis and osteoarthritis, Occipital Neuropathy and Carpal Tunnel Syndrome. So, basically a myriad of horrible things.

I went un-diagnosed for over 10 years with neuro symptoms before finding a doctor that finally recognized Chiari. By the time I saw a neurosurgeon he told me it was a surprise that I hadn't already died from the heart problems the Chiari had caused as my blood pressure was well in to the 200's and I had chronic taccycardia that caused me to have a resting heart rate of 180-200 every day and caused severe angina and shortness of breath. I had a craniectomey and C1-C3 laminectomy with a fascia graft from my left leg. I had no CSF moving from spine to brain and developed hydrocephalus. Immediately after the surgery most of my heart problems got better. However, a lot of symptoms have never gone away. My neurologist liked to say "You'll never be normal, but I'm going to make you as close to normal as I can". He was a great surgeon but after having CM for so long it is not surprising a lot of symptoms didn't get better.

The migraines and status migraines are horrible, and the fused vertebra in my spine combined with my other issues- particularly the autoimmune issues- have caused severe chronic pain. I lost the ability to walk last year which has really put a strain on me and my family. Losing my job as a result of my disabilities made the strain worse. I am on some pretty serious pain medicines but have not achieved the level of relief I hoped for, and have had more surgeries than I can count, and more scheduled for next month but I have been putting of the back surgery I need because I have a six year old daughter and a seven year old son that I need to take care of. I don't have any support from friends or family besides my husband, but he has to work a lot to pay rent and attempt to afford my medications, so that aspect has been really difficult.

I suppose the bright side is that I have so much experience with various illnesses, medications, procedures, etc. that I can offer advice on various topics

I look forward to getting to know you all!

Blessed Be
ChiariGirl84

[Darlene]

ChiariGirl84,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. You will find out we are supportive and relaxing place.

I see where you having been roaming around the different forums. As you can tell there are a great number of friends here to talk too.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

[Brain patch]

ChiariGirl,
Hello. I am so sorry for all you have been through at your young age. You poor girl. I thought I had it bad. I can relate to chronic pain, terrible migraine headaches, disability and some other things you mentioned. I am glad you have a husband that at least helps. Just wanted to say welcome. Feel free to send me a message any time.
Much love and peace,
Brain