Hello everyone! I was going thru your forums and have learned so much! Felt I should post and say thanks and quite possibly pick your brains to get more information.

I am 36, have been dealing with pain now for just over ten years. Going to try and give you all the short version real fast so I don't put anyone into a deep coma. Ten years ago had to have an emergency hysterectomy, lost 2500ccs of blood hemo hit a four the doctors blamed all the pain on misfiring of my nervous system due to blood loss. Had a 20lb tumor crushing my insides for at least 3 to 4 years. Been seeing pain doctors and every other docs for over 9 years. Just recently moved to another state went to another doctor had to go thru all my history again he took one look at my arm and leg (both right side) he feels it is RSD. I have swelling as well as skin discoloration (looks almost black) VERY sensitive to the touch they are going to be doing a g something nerve block that I'm nervous about. Anyway thanks for listening and I apologize if I put you all to sleep

Sorry to hear your in pain. A 20lb tumor wow. Not familiar with RSD. Hopefully this new Doctor can help you. Good luck!!

I'm so sorry that it took them this long to discover that you most likely have RSD! I first started my symptoms in Nov. 2012 - like you, my leg was first and turned red/blue/purple, the pain unbelievable - but it clued my doctor in that something was wrong and so began the rounds of specialists. I believe it may be a ganglion block that you were trying to remember? (Don't worry, brain fog is part of RSD!) I haven't had one but from what I've researched it's a quick procedure - just a few minutes (probably after all the prep part is done). They most likely hope to see if you will feel relief from pain. If you do, they can schedule several to be done until you get the best benefit. My only thought is that you really want a doctor versed in and familiar with treating RSD - not just any doctor however well-meaning they might be. RSD is a difficult disease to treat/manage especially as you have most likely gone undiagnosed for some time. Also, now that you've said hello - try to find the RSD part of the forum for a way better answer than mine! That's what I'm going to look for now too - hope I see you there. PS: It helps to read through the intro items above where you said "hello" to figure out how best the site can help you All the very best!

Thank you! I've got a few other things going on with me as well that I've noticed this forum has information on. I've got a great support system within my family but even my husband has a hard time understanding at times. So its been so helpful and encourageing to read other stories and find I'm not alone and hopefully once I gain more information and learn more even my story can help someone out there. Living in pain has never been easy however, living in pain and having support helps make living that much easier. Thanks again talk to you soon!

Hello and welcome to Neuro Talk. You will find alot of good folks here. Continue to explore the boards and make yourself feel at home. Many here suffer from RSD. Some of them will have some ideas for you to present to your physician. Demand good care with pain medications. RSD is no fun, and I do hope you have compassionate doctors in your corner. I hope the pain block works. If it doesn't keep moving forward to look for other treatments. Try the RSD Forum when you get a chance. Again Welcome, I am here to chat to anytime. ginnie

Welcome.

So sorry you have RSD. just told another new member, it's a monster to live with.

It's good you have support and love. It does help.

I do hope the ganglion works, if that's what it turns out to be.

I had those. Didn't really help my scalenes, but at that time they were really bad.

I might suggest you kep a pain journal or diary. Include everything or a whil, to see a collective picture of your activities and habits. You may find it helpful, to get a handle one certain aspects you can improve upon.

Take care...

Thanks for that suggestion! I actually bought a notebook today to start keeping track. I've been living with RSD(if that's what it turns out to be) for a long time. No doctor had ever given it a name though unfortunately I was just put on medication after medication. And due to my other illnesses I cannot take a beta blocker or lyrica, nuronton(spelling) and other medications so they have me on some heavy stuff I'm hoping now that I've got a name there is another way to go about treatment. I'm game for anything that will get me out of pain. I unfortunately have an incredible pain tolerance I am thankful though that the drs all know this because of some of the situations I've been in reading the forums my heart goes out to those who the doctors say its in their head or that they are seeking. I try to stay positive especially around my kids that has backfired though air causes me great discomfort and I've brushed against a door at the school once and the pain was so intense I guess my body couldn't handle it I passed out woke up in the hospital no fun hehe. Thanks for listening

SMtz77,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Welcome SMtz,