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Old 04-13-2013, 12:03 PM #4
MELwith RSD MELwith RSD is offline
Junior Member
 
Join Date: Apr 2013
Location: Arlington VA
Posts: 17
10 yr Member
MELwith RSD MELwith RSD is offline
Junior Member
 
Join Date: Apr 2013
Location: Arlington VA
Posts: 17
10 yr Member
Frown

Quote:
Originally Posted by SMtz77 View Post
Hello everyone! I was going thru your forums and have learned so much! Felt I should post and say thanks and quite possibly pick your brains to get more information.

I am 36, have been dealing with pain now for just over ten years. Going to try and give you all the short version real fast so I don't put anyone into a deep coma. Ten years ago had to have an emergency hysterectomy, lost 2500ccs of blood hemo hit a four the doctors blamed all the pain on misfiring of my nervous system due to blood loss. Had a 20lb tumor crushing my insides for at least 3 to 4 years. Been seeing pain doctors and every other docs for over 9 years. Just recently moved to another state went to another doctor had to go thru all my history again he took one look at my arm and leg (both right side) he feels it is RSD. I have swelling as well as skin discoloration (looks almost black) VERY sensitive to the touch they are going to be doing a g something nerve block that I'm nervous about. Anyway thanks for listening and I apologize if I put you all to sleep
I'm so sorry that it took them this long to discover that you most likely have RSD! I first started my symptoms in Nov. 2012 - like you, my leg was first and turned red/blue/purple, the pain unbelievable - but it clued my doctor in that something was wrong and so began the rounds of specialists. I believe it may be a ganglion block that you were trying to remember? (Don't worry, brain fog is part of RSD!) I haven't had one but from what I've researched it's a quick procedure - just a few minutes (probably after all the prep part is done). They most likely hope to see if you will feel relief from pain. If you do, they can schedule several to be done until you get the best benefit. My only thought is that you really want a doctor versed in and familiar with treating RSD - not just any doctor however well-meaning they might be. RSD is a difficult disease to treat/manage especially as you have most likely gone undiagnosed for some time. Also, now that you've said hello - try to find the RSD part of the forum for a way better answer than mine! That's what I'm going to look for now too - hope I see you there. PS: It helps to read through the intro items above where you said "hello" to figure out how best the site can help you All the very best!
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