I guess you know from my title, if I am on this site, I have Trigeminal Neuralgia, had Gamma Knife surgery and now have more problems! About ten years ago, I had three levels fused in my neck. Everything was okay until I had a non-collision car accident which damaged my neck above and below the surgery causing neck, face and arm pain. My neurosurgeon sent me to a TN specialist who is “world renowned” in Gamma Knife surgery.

Well, after the procedure and the halo had been removed, a nurse and technician came in with a clear dome they placed on my head and the nurse told the tech, the measurement had been wrong. I put my hand to the side of my head and felt a gap between the rod and my face. I asked what the problem was and they said everything was okay. I was alert but morphine kept me from taking names and asking for more information.

Anyway, when I went home, I discovered only one screw had actually made contact on my face and the back screws grazed my head. Within a few days, my neck started to hurt and I lost the use of my arms. I called both Neurosurgeons and was told to give it some time. I assumed the weight of the halo caused the damage to my neck because it was not properly attached. I do not want to take legal action, I just want answers! After a year, I still have one hole in my face, limited use of my arms and I am on disability.

A few weeks ago, I went back to see the Gamma Knife doctor. For the first time, he said the clear plastic dome was not to measure for the halo, rather a gauge for the amount of radiation to use for the surgery. Then he said, “If you have lost confidence in me, you need to find another doctor”. Now, I am really scared! I understand the effects of excess radiation can take a long time to show up. Does anybody know what type of doctor could look at the CT and x-rays taken since the procedure? Or, does anybody have any words of wisdom? Thank you.

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sad news to hear from you. I have listed below a forum where you could find some assist with you problem and find a doctor for you to see.

Trigeminal Neuralgia:
http://neurotalk.psychcentral.com/forum26.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene, I appreciate your kindness and I love your "pencil"! I am going to check your link right away and will keep you posted. I am still trying to find my way around this site. So, I hope I did this right...Thanks again, Jan