[EllaBlue]

Hello Everyone. Well where to begin. Maybe by saying hello and that I am glad to meet everyone. Due to my health, I don't always get onto the computer AS much as I would like and as much as I desperately need support, it is really important to me that I try to help others. Giving back is so important.'


With ALL that I do deal with, the Lupus, the Sjogrens, The APS syndrome, the Raynauds, the HORRIFIC chronic pain from my spine issues the Fibro....right now I am out of my MIND with this Peripheal nerve disease.
When it is muggy, I want to jump off of a cliff!!!!!!!!!!!!!!!! I cannot explain the feeling. I no longer sweat...so that is really bad. I will explain more later maybe in a forum where I belong. I think I am here just to introduce myself Thank you for your patience.

I am trying to find out if the estrogen that I take could be making the peripheal nerve disease worse? Goodness!!!!!!!!!!!!!!!!!!!!

Well just imagine, a day like today 56 degrees with 100 percent humidiy. That calls for an ac on, but the heat set on 69 as I get TOO cold, but the DE-humidifier is running on full blast to take the moisture out of the air because I have the creepy-crawlies on my skin!!! NO one really understands in my life
A few try....but how could they?
I cannot be in the sun when that does come out because it could kill me with my Lupus.
Neurotin has been offered, but I am a bit afraid.
Gonna try the BRAND plaquenil, as they are thinking maybe I am allergic to the fillers in the generic.

My rheumy retired after near 40 years with me (SO SAD) and I finally found an amazing one!! I am having a special heart test this coming wed. A chemically induced stress test. Fun seeing I don't sweat. AND my rheumy has me hooked up with a neurologist in June so that is good.

Are there any vitimans? herbs? something to regulate this broken darn body thermostat as I call it? All of these autoimmune issues have pretty much ruined my life. Between the pain and issues I am a prisoner of my own home.
I know I don't sound it today...but I really am positive and I TRY SO, SO very hard to go on. I do admit to being worn down.
Nice to meet you all!!
EllaBlue

[Bears Fan]

Originally Posted by EllaBlue

Hello Everyone. Well where to begin. Maybe by saying hello and that I am glad to meet everyone. Due to my health, I don't always get onto the computer AS much as I would like and as much as I desperately need support, it is really important to me that I try to help others. Giving back is so important.'


With ALL that I do deal with, the Lupus, the Sjogrens, The APS syndrome, the Raynauds, the HORRIFIC chronic pain from my spine issues the Fibro....right now I am out of my MIND with this Peripheal nerve disease.
When it is muggy, I want to jump off of a cliff!!!!!!!!!!!!!!!! I cannot explain the feeling. I no longer sweat...so that is really bad. I will explain more later maybe in a forum where I belong. I think I am here just to introduce myself Thank you for your patience.

I am trying to find out if the estrogen that I take could be making the peripheal nerve disease worse? Goodness!!!!!!!!!!!!!!!!!!!!

Well just imagine, a day like today 56 degrees with 100 percent humidiy. That calls for an ac on, but the heat set on 69 as I get TOO cold, but the DE-humidifier is running on full blast to take the moisture out of the air because I have the creepy-crawlies on my skin!!! NO one really understands in my life
A few try....but how could they?
I cannot be in the sun when that does come out because it could kill me with my Lupus.
Neurotin has been offered, but I am a bit afraid.
Gonna try the BRAND plaquenil, as they are thinking maybe I am allergic to the fillers in the generic.

My rheumy retired after near 40 years with me (SO SAD) and I finally found an amazing one!! I am having a special heart test this coming wed. A chemically induced stress test. Fun seeing I don't sweat. AND my rheumy has me hooked up with a neurologist in June so that is good.

Are there any vitimans? herbs? something to regulate this broken darn body thermostat as I call it? All of these autoimmune issues have pretty much ruined my life. Between the pain and issues I am a prisoner of my own home.
I know I don't sound it today...but I really am positive and I TRY SO, SO very hard to go on. I do admit to being worn down.
Nice to meet you all!!
EllaBlue

First, let me start off saying just try to smile. I may not have gone through what you have but I would make a great listener if you just wanted to vent. Everyone needs someone like that. I have had to deal with a concussion and its side effects(i.e. MENAPAUSE, mood swings) a total hyterectomy, both in the last three years. My husband tries to understand and be patient, but I know its hard. He has his own issues as well. He is learning to deal with the loss of his sight.

[Darlene]

EllaBlue,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sorry to hear of the many things you are going through. Here is a forum that you will find a lot of assistance with fellow friends.

Peripheral Neuropathy:
http://neurotalk.psychcentral.com/forum20.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.