[Bill Nottingham]

Hello all. Bill here. I have been in terrible pain for 7 years. I JUST got a diagnosis after searching since onset, 7 years ago. Small fiber nueropathy/ autonomic neuropathy. Mostly because I am forced to deal with an incompetent VA and I was told the pain was in my head, drug seeking, crazy, lying, etc. Considered killing myself several times and I still do. I am on a few different meds but nothing is really working enough to bring me any peace. Not sure how much longer I can put up with this. I hope someone here can tell me something my Dr and I don't know. Or tell me something to help me get through this. I'm beyond desperate!

[Hopeless]

Hi Bill,

I hope you get some answers. There are plenty people here to help. Try putting your post on the specific forum for your condition and you will get plenty of comments.

Welcome and stick around. Help will come to you.

[ginnie]

Welcome to Neuro Talk. Many here have those feelings when pain becomes unbearable. Many have written post about their doctors not listening to them when their pain is extreme. This leads to a sorrow that does not leave.. This site that you found, can help you get through it. Pain does funny things to people, it makes us weak and hopeless. The best thing you can do is find that doctor who does have empathy and compassion. It took me years to find the team I have now. The VA hospitals are changing for the better. I think the worst part is when someone has power to make you feel better, or tells you it is all in your head. In that case, wave bye bye, and seek another out, even if you have to go to the VA patient advocacy person at the VA, and tell them you are not getting the help you need. You will find support right here. Maybe you will make a friend or two. I came here in a state of fear, and got through my issues with the help of the people I met here. I just never left. Please don't give up. Help with pain can be found. Sometimes it takes a fight to get the help. I hope a lot of folks respond to you and offer some suggestions. The VA here in St. Petersburg Florida, is wonderful. I take a friend of mine up there on a regular basis. Bring a person with you when you go in. Sometimes doctors will listen more when someone else is present and backs you up.
I hope you fight to get you life back, so that there is hope again for a decent existence. I am here anytime to listen. I will keep you in my thoughts and prayers. ginnie

[Darlene]

Bill,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Click onto the following forums, there will be someone to help you.

Peripheral Neuropathy:
http://neurotalk.psychcentral.com/forum20.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

[Saffy]

Hi Bill .. So sorry to hear how low you are feeling. There is always someone to offer advice, comfort and plenty, plenty of sympathy.

x

[Bill Nottingham]

Thanks everyone. It feels good to hear from other that suffer the same as me, or did. I am not alone.

[Bluebelle]

Hello, Bill, and welcome! Don`t give up! Read my posts - not many, I am new, too - but after 4 years, I got more relief than I even expected! You can, too - just hang in there! And God bless you!