[Scharla Foryszewski]

Hi, I am Scharla Foryszewski from west Texas. After a car wreck four years ago I was diagnosed with post concussion syndrome...Next Hashimoto and had my thyroid removed...I got sicker and sicker and was diagnosed with Lupus,Sjogrens, and Raynauds. I also have fibromyalgia. About six months ago I was diagnosed with Myesthenia Gravis.
It seems I am autoimmune magnet.
Along the way I have been on prednisone and Methotrexate...spend 24 days in hospial with pneumonia. I have osteopenia, cataracts and several chipped teeth that will habe to be capped....due to steroids.
I am now on Mestinon and Cellcept for the MG, I am on Neurotin for fibro...and Plaquenil for Lupus.
The MG is really taking its tole on me. I have had to get a scooter as I am so weak and cannot get out of the house without it. The MG started in my eye with droopy lid. It is now in legs arms and recent lung testing shows I have a lung problem that is indicitive of MG>..so that is when I was started on Celcept.
THis is a question I have....THe cellcept is making me weak and my hands are peeling....could you tell me if it made you weak..anyone or if you had peeling skin on hands? I just don't want to get so weak and all that I end up in hospital...It seems my breathing is not as good as before Cellcept. I live in fear of stopping breathing. ANy help will be appreciated..
Hugs,
Scharla

[Darlene]

Scharla,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

I see you have been going around through different forums, you will find many friends to help you out.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.