Hi all,


i joined the group because I have chiari type II. I had the decompression operation about eight years ago when I had a toddler, preschooler and husband.
Now I am a single mum with two teens with special needs, and I homeschool them.

I feel so frustrated because I am exhausted just about all the time. If I sent the girls to school I would have to work at least 4 days to make enough money, and I'd have nothing left for my girls, or much for my clients (I'm a counsellor).

I can't find much info about the long term symptoms of chiari after surgery. I am in no way as much pain as I was. The burning and choking are not so much.


being so tired, having little energy and weak muscles is frightening at times. I'd like to wake up feeling alert, alive and able to go through the day without wanting to go to bed. Does anyone else experience this level of tiredness like chronic fatigue. Does anyone also have deteriorating perceptual vision, balance and joint pain even when things were better after surgery.

If you know of any web sites talking about symptoms of chiari and living with it.
I'd also like to know what exercise I can do, when so many are a no no.(even swimming laps and cycling on a recliner bike are painfu).

Thanks all,
Melindal

Melinda,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

I see you have found the Arnold Chiari Malformation. So to hear what you have been going through. Again you will find some wonderful friends here.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.