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Old 11-04-2014, 07:28 PM #3
AussieDad AussieDad is offline
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Join Date: Nov 2014
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10 yr Member
AussieDad AussieDad is offline
Newly Joined
 
Join Date: Nov 2014
Posts: 1
10 yr Member
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You're not alone even though you may think so. Seizures are bought on by sound, it used to also be heat and movement. The sound is around 1500Hz so its possible to use an equaliser to cut that range out for TV and Phone. All other beeps and hums in the house have been removed or deadened. Longest seizure 35 hours and most in one day 31. Go stiff as a board, conscious, can communicate with eye blinks. Had a tumour removed near the left front ventricle and was ok for a while but he could not remove all of it and it must have grown back. Outside its necessary to wear ear plugs, Headphones and play equalised music. Dramas are car horns, any beeps, mobile phones, planes, sirens and alarms. The world is a noisey place. Getting stronger/better very slowly but any of the above will still cause a seizure.
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aura, chronic migraine, limb jerks/twitches, temp locked-in syndrome, temporary paralysis


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