Hi, just wanted to introduce myself. I have a son diagnosed with Ataxia a couple of years ago, and saw a post from a young woman who was also diagnosed (in 2009) without a clue as to the particular genetic "flavor". I'd done too much 'Internet Searching" when he was first diagnosed and my husband was going to Afghanistan on his last deployment, and have gotten away from trying to figure out what's going on with him or how I can contribute to helping find a cure or fund research, so decided to look for some support groups to join to see if others have gone through the same challenges with finding a connection to a known genetic sequence. Maybe I'll run across that post from 2009... Would love to know how that young mom has progressed, coped with her diagnosis.

Welcome Gipper,

I was not able to find the post you referred to from '09 in the archives (Search function), but you may be able to if you can recall any more keywords (search criteria).

Some forums here you might try for information/sharing/support are:

Children's Health (As this concerns your son)

Movement Disorders (There seem to be more threads/posts pertaining to ataxia here)

Neuromuscular (Some discussion here as well)

Best Wishes,

Doc

Gipper,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

First of all thanks goes to your husband as well as yourself for the duty for our country. Doc, has given you some great forums to help you out with your situation.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.