[bellakinns]

In Feb 2013 I had my 3rd spinal fusion surgery. It failed.
I have no memory of march or April except for tiny pieces.
I'm trying to make this as short but informational as I can.
I had an MRI DTI done in May. Neurologist says I have brain damage due to lack of oxygen, Oh I also had 3 blood transfusions 2 days post op with BP 65/43 my systolic never above 80 , bp 98/48.
I know have a stuttering speech and hard to get the right words out gets worse when I'm upset or in a lot of pain and also short term memory loss .neurologist said no cure don't know if ill get better, worse or stay the same.
I might also mention that my family has turned away from me
I live alone, I'm married but been separated 2 years. I have no form of transportation except husband to take me to store or appointments, I'm usually alone 24/7 a few days at a time.
I am feeling alone lost scared and not sure where to turn.
did I have a stroke? what caused the lack of oxygen?
I have no answers.
Thank you for taking the time to read this

[jmcclellan]

Hello Im Judy and feel almost the same as you I have RSD and just found this group yesterday,I do believe its the right place for me because I am also scared and searching for answers I hope you the best of luck,

[bellakinns]

hi there and its nice to meet you
I sure hope this place helps us both
if you ever need an ear Im always around.

[ginnie]

I am very sorry that your surgery failed. Have your doctors given you any reason for lack of O2? I think if I were in your shoes, I would get a copy of all my medical records and start reading them with a fine tooth comb.
I also want to welcome you to Neuro Talk. Many of us come here in a very frightened state, and or facing some serious medical issues. You will never be alone here. After a bit of time, many of the folks here become like a family. This site can help you get through the medical problem, and maybe give you some Ideas on how to help you.
Have you gotten a second opinion for the effects you are feeling?
I am alone too bellakinns, but I don't feel so alone when I am here. I lost a few friends because of my own health conditions. There are people who have never experienced a trauma before, and therefor don't know how to respond to a trauma in another person.
In your case lack of O2 is not something I have heard of before, and the reason why I would seek out the medical records. I hope that in time you get to feeling better, or find a physician better able to address your needs. ginnie

[bellakinns]

Hello and thank you
I have gotten the records that are free I have 98 pages of doctors and nurses notes that cost 1 dollar a page I am not able to afford they hold keys to a lot of answers I am sure.
the lack of C02 was given to me by the neurologist I am requesting my records from her now, its one of 2 things 1 is I had a stroke at some point, 2) when I had to have the blood transfusions 2 days post op my blood pressure dropped very low 68/45 more then once so my brain wasn't getting blood or oxygen so maybe then I have many unanswered questions. and as far as a second opinion no I have no insurance and cant afford it right now I have been researching my back surgeries I had done and what should of been done. I have also learned from speaking to many people that this surgeon has a very bad reputation and also he did my hospital discharge papers 20 days after I was discharged...Odd huh? but I'm told that's what he does to try and cover his ***.
I am going to seek out therapy I really need it, also I just made an apt to get established with a primary doctor right now that's all I want need and can afford, hopefully they can at least give me something to help with the pain and anxiety.
thank you for your kind words
I know being here will help just being able to speak how I feel
just worried that I wont be able to be on here as much as I want need to be due to my pain. but I'm going to try

[Darlene]

bellakinns,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sad to hear about the condition that you are going through. Hopefully you will find a doctor to help you out with your condition. It was nice to have someone to carry you to some places. One thing is that while you are able to be with us you will have many to keep you company at a time like this.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.