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Old 10-20-2013, 10:44 AM #1
cnrcwe cnrcwe is offline
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cnrcwe cnrcwe is offline
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I experience neurological spasms and pain daily. I have exhausted all the approved treaments known for both my Cervical Dystonia and RSD. I have joined the forum to seek tools to keep fighting and find someone who understands what I am going through. I find that the hardest everyone thinks I am just complaining to get attention included Drs. Friends and family try to understand but they just don't. Anyone have words of wisdom or recommendation to get through the day.
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Old 10-20-2013, 02:25 PM #2
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spasms where ????? have you both been diax with anything . don't suffer see the dr...
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Old 10-20-2013, 05:08 PM #3
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Quote:
Originally Posted by cnrcwe View Post
I experience neurological spasms and pain daily. I have exhausted all the approved treaments known for both my Cervical Dystonia and RSD. I have joined the forum to seek tools to keep fighting and find someone who understands what I am going through. I find that the hardest everyone thinks I am just complaining to get attention included Drs. Friends and family try to understand but they just don't. Anyone have words of wisdom or recommendation to get through the day.
Welcome to NT!

You sure have come to the right place for support and understanding.
Pain is the common thread which binds us. I too felt the way you do regarding friends/family not understanding. This forum was my saving grace.
PLEASE visit the RSD forum! so many wonderful people there, plus alot of good information on this monster condition.
Your pain is absolutely real.

Make yourself at home here. The atmosphere is very down-to-earth and nobody will ever judge you. Lots of good forums here, so post anywhere you feel inclined. There's a friend around every corner.

Just holler if you have any questions or need help in finding your way around. We all look out for each other

It's great to have you!

Caring,
Rae

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Old 10-21-2013, 03:44 PM #4
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Default Hi Cnrcwe

Welcome to Neuro Talk. You found a great site. I don't have the exact same thing as you do. I have had two cervical fusions and have PN. I do know the pain you are experiencing. Has anything at all been done to help either of your conditions?. Has anyone ever mentioned Ketamine to you? This helps with PN and so far I have heard from several people who have tried the compounds with this in it, that say it does help. Can they do anything to help your cervical neck? I did have several ketamine infusions, which helped for about three months. Don't know if this would be something that could be tried for you.
Don't lose hope that there can be some relief. I will be here to talk to any time. ginnie
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