Hi Pono, one of the things that stuck out to me was the Chiari? Have you ever had a follow up for that? I have syringomyelia, not chiari but alot of people have both. THere are so many symptoms that you list that many with chiari or SM also have troubles with.

One thing is that if you do have chiari you should not have chiropractic work done. The message board for ASAP is down right now but you can still read all about it at the site. The web site is at

http://www.asap.org/

Give it a look around and hopefully the message board will be fixed soon and you can get more information there. I am still learning myself but there are many there who know so much and are very helpful.


Hope you feel better soon...Sue

thanks to all who've offered suggestions, support, Links, info...

I've been in such a state of dysfunction--physically, mentally, etc.--
Simple things like reading , writing, thinking are tiring & confusin; activities of daily living : personal care, home, chores, finances, etc.- overwhelming.

I do appreciate support & help offered.
May take awhile to sort thru
Not sure what may be best, keep looking for better --tangible things I CAN do. This Community is BIG! any directions, assistance in navigating and
Suggestions, info, experiences shared are greatly appreciated, as well as understanding.
I'm trying to understand --what 's happening and ways to deal, heal, Live.
to break this vicious cycle of Pain. Fatigue. Dysfunction.
I became more dysfunctional after stopping Pain meds. {few weeks ago]
but I'm back on. Not THE answer but Helps. Not sure about the other meds. new Dr. prescribed--too many side affects when tried before and now, as I try each one , again.
Re-searching treatments, alternatives, options....
One step at a time...
will keep looking into suggestions, Links, info...
again THANKS and BLESSINGS...

aloha,
Li

Did you find the main page link - most will save or bookmark that for easy access to all forums.

main page-
http://neurotalk.psychcentral.com/index.php

YES,
thanks, I found... still learning how to navigate around!