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Old 12-30-2013, 01:04 AM #1
jraytn jraytn is offline
Junior Member
 
Join Date: Dec 2013
Location: Tennessee
Posts: 6
10 yr Member
jraytn jraytn is offline
Junior Member
 
Join Date: Dec 2013
Location: Tennessee
Posts: 6
10 yr Member
Default New Member

Hi, My name is Ray Thank you for accepting my request. I am here for support and offer my take on a rare disease that I was diagonsed with in late 2011 and 2012 called Pachy Meningitis, again it is a very rare disease. Wendy gave me the information to this site, she also has this disease and we have talk via phone. My daughter Michelle found Wendy on another site she had started, we shared phone numbers and can relate to each others stories and illness she is the only other person I have found with this, but I am beginning to hear of more. I hate to know others have this disease. It has been a a long roll to hoe. I have had so many effects from this disease and the treatments for! However my neuro doc is finding the right meds for now I am not have as many issues as I had in the beginning! Praying we are on the right track.
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"Thanks for this!" says:
ginnie (01-03-2014), Rrae (01-02-2014)
 


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