 |
|
| New Member Introductions Welcome to our community! Come in and introduce yourself to other members!! |
| Reply |
|
|
Thread Tools | Display Modes |
03-24-2014, 12:22 AM
|
#1 | |||
|
||||
|
Member
|
I used to post quite a bit on this site some time ago and eventually had some improvement in my symptoms, which seem to be flaring up badly again.
I felt like I was doing better until the implantation of a pacemaker in 2012. Having been maintained on low dose Prednisone, prior to the pacemaker, I had been able to nearly discontinue the steroids. Afterwards, I was unable to ever return to the previous low dose. More recently, because of the long term Prednisone, I developed Osteoporosis and was put on a 4 week trial of Atelvia. It is pretty apparent that my body does not like foreign material and various medications and it sure did not like that one. Week one resulted in really severe diarrhea. Week 2 resulted in pain. Weeks 3 and 4 resulted in overwhelming pain all over. My Rheumatologist questions the Sjogren's diagnosis and says that a number of people are misdiagnosed with this, when they actually have inflammatory polyneuropathy. Thanks for listening, Cathie Yorkiemom Last edited by Yorkiemom; 03-24-2014 at 12:23 AM. Reason: clarity |
|||
|
 Reply With Quote
|
|
03-24-2014, 01:31 AM
|
#2 | |||
|
||||
|
Legendary
|
 Cathie,  It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.Glad to see you have come back to be with us. Check into the following forum to see about the Osteoporosis: http://neurotalk.psychcentral.com/forum20.html Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.  Darlene 
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
|
|||
|
|
Reply With Quote
|
|
03-24-2014, 03:56 AM
|
#3 | |||
|
||||
|
Wisest Elder Ever
|
Welcome back, Cathie!
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
|
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | Leo Pautu (03-26-2014) |
|
03-24-2014, 06:49 AM
|
#4 | ||
|
|||
|
Magnate
|
--good to see you back; we missed you (and your puppies).
Of course, it's never a good thing when people develop "new" problems. Do visit all your old cohorts at the neuropathy forum--we can discuss why your rheumatologist is questioning the Sjogren's diagnosis and ways that Sjogren's neuropathy or neuronopathy may be distinguishable from other kinds of inflammatory neuorpathy (definitely a tough diagnostic challenge, as so many inflammatory neuropathies are fundamentally autoimmune). |
||
|
|
Reply With Quote
|
|
03-26-2014, 06:41 AM
|
#5 | ||
|
|||
|
New Member
|
So TRUE....GOD is everything..
|
||
|
|
Reply With Quote
|
| Reply |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| Newbie - MCTD | Autoimmune Diseases | |||
| Mctd & sfn | Autoimmune Diseases | |||
| Sjogren's Syndrome plus more... | Autoimmune Diseases | |||
| Sjogren's | New Member Introductions | |||
Hi to all/CIDP, MCTD, Osteoporosis, possible Sjogren's
Greetings!!
Linear Mode
