New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!


advertisement
Reply
 
Thread Tools Display Modes
Old 02-05-2014, 08:47 AM #1
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
Default Negative paraneoplastic panel BUT!

I dont understand what is going on. My doctor wont explain anything to me.

I was just informed that my paraneoplastic panel was negative but I tested positive for N type calcium channel AB.

My name is Jeff, I am 50 and very scared.
xnerd is offline   Reply With QuoteReply With Quote

advertisement
Old 02-05-2014, 10:23 AM #2
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

This link explains a little.

I am sorry, but presence of this antibody, suggests serious
problems:

http://www.mayomedicallaboratories.c...rpretive/83369
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 02-05-2014, 01:08 PM #3
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
Unhappy

Quote:
Originally Posted by mrsD View Post
This link explains a little.

I am sorry, but presence of this antibody, suggests serious
problems:
Thank you for the response.
I know that it is almost always associated with small cell lung cancer.
I have read other things that it is associated with as well but they all classify this as PNS.

I dont know why the nurse that called me said negative for pns but positive for N type.


I have no cough
no blood
no weight loose just tingling in my legs and fatigue.

I dont even know what I am asking really. The doctor ordered P/Q ab serum test.

I wish that they would tell me something.
This is horrifying
xnerd is offline   Reply With QuoteReply With Quote
Old 02-06-2014, 06:44 PM #4
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
Default

now he is saying he is not concerned with this as hey believes its a lab error as the test was aborted. something about salt inclusion.


he is doing the p/q test to be sure
xnerd is offline   Reply With QuoteReply With Quote
Old 02-07-2014, 01:47 PM #5
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
Default

He said something on the order of a salt inclusion or formation in the test?
At any rate his MA told me that they are testing me for the P/Q just to be safe

Does that make any sense to anyone?
xnerd is offline   Reply With QuoteReply With Quote
Old 03-02-2014, 05:18 PM #6
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
Default

Still no result on the P/Q

Still so freaked out.

I had a chest CT scan.
No masses detected.
Colonoscopy No cancer.
xnerd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (03-02-2014)
Old 03-06-2014, 04:07 PM #7
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
xnerd xnerd is offline
Junior Member
 
Join Date: Feb 2014
Posts: 7
10 yr Member
Default

Ok so, P/q came back negative.
Doc says he im all clear.


Which I dont quite understand because you can test positive for N type channel and negative for p/q I think 4%?
xnerd is offline   Reply With QuoteReply With Quote
Old 12-15-2014, 01:47 PM #8
madisongrrl's Avatar
madisongrrl madisongrrl is offline
Member
 
Join Date: Jul 2014
Location: Midwest
Posts: 584
8 yr Member
madisongrrl madisongrrl is offline
Member
madisongrrl's Avatar
 
Join Date: Jul 2014
Location: Midwest
Posts: 584
8 yr Member
Default

Quote:
Originally Posted by xnerd View Post
He said something on the order of a salt inclusion or formation in the test?
At any rate his MA told me that they are testing me for the P/Q just to be safe

Does that make any sense to anyone?
Hi, I used to be a chemist. I would need more information and am not familiar with that particular test, but there could be a salt factor conversion or something like it. Your doctor might be telling you that it was a math error in the original reporting of your lab result.
madisongrrl is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Paraneoplastic syndrome and quite possibly cancer of the thymus KV2000 New Member Introductions 1 06-13-2012 12:21 AM
Paraneoplastic Panel......... invisable Peripheral Neuropathy 4 01-28-2011 09:52 PM
Paraneoplastic Panel vs. CA19-9 test.... invisable Peripheral Neuropathy 1 01-06-2011 05:50 AM
Paraneoplastic syndrome jeanayre General Health Conditions & Rare Disorders 2 01-10-2009 02:56 PM


All times are GMT -5. The time now is 09:37 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.