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Old 01-26-2011, 12:08 PM #1
invisable invisable is offline
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invisable invisable is offline
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Default Paraneoplastic Panel.........

I just got the all negative results on para panel........

Question for the Gurus:

I realize this means cancer is not causing my symptoms, but........

Does this mean I don't have cancer?

Hope this question makes sence, it does to me......

Thanks in advance, I know I can always count on you people to help!
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Old 01-27-2011, 06:58 AM #2
glenntaj glenntaj is offline
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Default Well--

--as many of the lab reports themselves will read, these negative tests reduce the likelihood that your neurological symptoms are caused by a paraneoplastic syndrome, though no test is perfect or foolproof.

It's certainly possible to have cancers WITHOUT paraneoplastic syndromes or symptoms, but, this is certainly a result you want to have, compared to the alternative.
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invisable (01-27-2011)
Old 01-27-2011, 09:07 PM #3
dahlek dahlek is offline
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Default As one who 'had' cancer and has severe PN?

The answer is to simply be more DILIGENT in getting your regular annual exams done!
In my case? The neuropathy appeared before the cancer or the auto-I thyroid. First Neuropathy, 6months later- the thyroid, 18months after the neuropathy- the cancer was found. After I was diagnosed with both AI thyroid and AI neuropathy. BTW? Many cancers can be developing, and never test positive for for 5-8 years before they are found.
Tho I was tested EXTENSIVELY, no particular tests were done for cancers, per-se at the time my AI neuropathy was diagnosed and then treated. It was after the cancer was detected, that my thryroid was actually determined to be AI rather than just malfunctioning. Tests for any of these issues can be not only expensive, but exhorbitant! And docs will only order the tests THEY CAN CLINICALLY JUSTIFY! So, just be super DILIGENT in the future and DON'T WORRY about such issues until they 'might' appear! Better to be forewarned and careful [similar to walking on thin ice?] than to just go forward blythely.
Also remember that the STATISTICAL ODDS of one getting one, two, three or more immune conditions? ARE EXTRAORDINARY! And thus? Quite rare.
I admit, I am an anomoly. But, I was lucky that in being diligent to my general medical care and with a regular annual visit to ALL of my specialists? I'm ahead of the game!
THIS spring I'll hit year FIVE in beating my cancer! AND Year EIGHT in 'maintaining' my immune thyroid and neuropathies! I LIKE 'maintenance'!
You can either be paranoid or simply proactive. I prefer proactive! Takes less energy! 's - j
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invisable (01-28-2011)
Old 01-27-2011, 09:49 PM #4
rose_thorn98 rose_thorn98 is offline
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Default

Thats great news Invisable. I know it doesn't give you a diagnosis, but its good to know its not serious.
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Old 01-28-2011, 09:52 PM #5
invisable invisable is offline
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Default Yes, it is good new......

Quote:
Originally Posted by rose_thorn98 View Post
Thats great news Invisable. I know it doesn't give you a diagnosis, but its good to know its not serious.
But still have to have Ca19-9 rechecked in 3 months by GI doc. Ca19-9 was not part of the para panel. It is still ten above the normal high.

Doc said something about my being at an elevated spot on bell curve, but elevation may be "normal" for me......that's as clear as mud!!

Trying not to worry, it is so exhausting!
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