Hello all. My name is Shannon. I'm 28 yrs old and have recently been diagnosed with Transverse Myelitis- believed to be the result of a B12 deficiency. I've been to 2 local Neuro Drs (Asheville, NC) and to the Mayo Clinic twice now. But the truth is that the Docs can't figure out exactly why this is happening to my body so they're calling it B12. It's scary not knowing. I joined this community not exactly sure of what I was looking for, but i believe I may have found something I need...
p.s. I've never used an internet forum before so if I'm off topic or not doing something 'right', I humbly ask that you please help me learn the ways of the forum.

Hi, Shannon,

I am not an expert but it occurred to me that you and your docs could consider Gluten Sensitivity if they have not already:

http://www.ncbi.nlm.nih.gov/pubmed/24637913


http://jnnp.bmj.com/content/76/7/1028.full

Someone with better knowledge of this site will stop by in the morning.

Mari

Shannon,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Click on the following forums there you will find some great friends to help you out.

http://neurotalk.psychcentral.com/forum17.html
http://neurotalk.psychcentral.com/forum49.html

Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

My name is Kara and I'm 35. I don't have exactly the same illness as you do, but I do have fibromyalgia so I can relate. To date, there is no cure and treatment only helps so much. If you'd like, we could become friends and support each other. **