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Hello I am new to the site my daughter has Pnkd onset at age two or earlier

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Old 04-22-2015, 01:34 PM #1
Staciemomofpnkd Staciemomofpnkd is offline
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Default Hello I am new to the site my daughter has Pnkd onset at age two or earlier
I don't see any discussions about PNKD but would love to meet some people going through this
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Old 04-22-2015, 02:15 PM #2
Lara Lara is offline
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Default Paroxysmal non-kinesigenic dyskinesia (PNKD)
Hello and welcome to the NeuroTalk Support Groups.

I can only find one older post so far and that's in the
Gluten Sensitivity / Celiac Disease Forum

Not sure if this link below will work but I'll post it anyway.
http://neurotalk.psychcentral.com/sh...018#post135018

There is a
Children's Health Forum
although it's not very active.

There is also
Movement Disorders Forum

There is a forum search feature that I'll post below. You may have more luck finding other posts.

http://neurotalk.psychcentral.com/search.php

All the best to your daughter and to you.
I hope you're able to find information that is of help.
Last edited by Lara; 04-23-2015 at 04:15 PM.
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Old 04-22-2015, 03:41 PM #3
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Welcome Staciemomofpnkd.
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Old 04-23-2015, 01:00 AM #4
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Wink Great to meet you!!
Staciemomofpnkd,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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Old 04-23-2015, 02:06 AM #5
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Hi Staciemomofpnkd

Welcome to NeuroTalk.

I have only been a member for a short time but have discovered that it is a very supportive and knowledgeable community.

I am sorry to read of your daughter's PNKD diagnosis.

You might find the fairly technical information about it here helpful; http://www.medscape.com/viewarticle/581684 .

All the best.
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Old 04-23-2015, 05:03 PM #6
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FYI - If you don't have a Medscape account, it's very easy to register.

Medscape Registration Page
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