I am new here - just joined and finding my way around this forum. I found NeuroTalk through a Neuropathy group I belong to on Facebook ...and thought it would be nice to find new friends in the "same boat" as I am. I was diagnosed with PN about a year ago and have been in alot of pain. Not everyday...some days are better than others. Yesterday was the pits; but today I am feeling better. I want to learn more about taking care of myself and alternative ways to cope. The pain started in my feet...tingling, burning and numbness and has progressed up my legs to my knees with pain that now needs a Lidocaine patch along with Gabapentin. I am still working, but near retirement...I am luck that my job entails sitting so I am not on my feet all day. But by 4 pm when I get home, I am exhausted and in pain.

I have alot of grandkids (8) and would love to run around with them but find I am limited in what I can do. Basically I just want to talk to others who understand what I am experiencing and come away with some knowledge that I can cope.....thank you for listening....

BeaderBubbe,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Looks like you have your hands full. I only have 5, which one started college and is staying with us at this time.

Click on the following it will take you straght to the PN forum.

http://neurotalk.psychcentral.com/forum20.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Welcome BeaderBubbe.

BeaderBubbe,

I just found your first msg. and see you mentioned PN.

Here is the link to the Peripheral neuropathy forum

Here's also the link to PN Tips, Resources, Supplements & Other Treatments

Hi Darlene, thank you for the welcome. Will check out that link. Still finding my way around. Today was so painful. Had our BBQ yesterday, was standing on feel too long and am suffering today. Been on the couch most of the day although no relief...Want to get on this site more often but some days are not good. Looking forward to some good talks here.

Hi, I am new here. I have CIPN from June 2013. I had to stop chemo due to neuropathy. I was almost done I had two sessions left. My neuropathy was first sensory. From last week I noticed some muscle weakness in both legs and arms. I have muscle twitching, cramping and pain. I think my neuropathy is now motor neuropathy. I have an appointment with my neurologist in two weeks. Let's see what he will say! I am worried why did it get worse? I am doing physical therapy, even after that why I had do I have muscle weakness. What to do to make stop the neuropathy progress? I know I need to lose weight. I gained 30 pounds during chemotherapy. But is it the reason why the neuropathy is progressing? My therapist said that I have 100 percent muscles in my legs. I am taking supplement B12,vitamin D, iron, one a day woman vitamin. I am on Gabapentin 800mg a day.
Please any advice.

Welcome to NeuroTalk...Sabela...

If you search the PN forum for "chemo" you'll find posts with
suggestions to use OTC agents to help prevent or lessen damage to nerve cells DNA by chemo drugs.

example:
http://neurotalk.psychcentral.com/post1066194-7.html

Acetyl carnitine was used in some studies over the past and showed some improvement in some people. They used 1 to 2 grams a day.

We have more information at our Peripheral Neuropathy forum here:

http://neurotalk.psychcentral.com/forum20.html

Chemo also depletes magnesium, so using a SlowMag twice a day may help replace that. There is a lotion now that is very convenient and helpful for specific targets like the feet or lower legs etc. Morton Epsom Lotion...available at WalMart and online at Amazon.com Use only a little bit on each application as it is concentrated and you don't need alot. Apply only to intact skin.
If you apply at night it will help you sleep too.

Welcome Sabela.

Sabela,

It is great to have you come and be with us. You will find a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene