Hello all. I am 43, I was diagnosed at 38 with "Severe Idiopathic Progressive Neuropathy", it has ruined my life and took a massive toll on my marriage and I am angry, scared, defeated, lonely and in so much damn pain that even the pain meds no longer help.

I have been looking for a place where I can come and vent and not be judged. I think that we all know that others who are healthy, just do not understand the battle we fight everyday just to get out of bed. I feel so guilty for getting sick, like I have robbed my wife of living her life. I feel as if she resents me for it even though she would never admit it. It hurts my heart so much to feel this way.

Before I became sick I played men's Ice Hockey on a travel team, we went all over the mid-west for tournaments and that was taken from me, Doc told me no more hockey. I have been playing guitar since I was 13, now I can barely press my fingers on the fret board to play chords. That is not because of Neuropathy, I have been diagnosed by my Neurologist with "Bi-Lateral Carpel Tunnel" after my last EMG test to see if the disease had moved into my hands. Now I have to have corrective surgery.

Happy to be here, hope I can add some good to others and receive emotional support as well. Blessings to you all.

Hello Thaydrian,
Welcome to the NeuroTalk Support Groups.

Here is the link to the
Peripheral Neuropathy Forum

and also
Repetitive Strain Injury Forum

I'm sorry to read about the enormous changes in your life due to your conditions but I'm sure that you'll get information and support here.

take care.

Welcome Thaydrian.

hey bro, there is a woman on the tbi support group who played semi pro hockey for women before she got sick. you guys would have something in common. I don't want to give out her name but I will give her yours if you want.

as far as the suffering...ugh!!!! welcome. you didn't ruin anyone's life as you didn't ask to be sick.

before I got sick I thought I had some RIGHT to be healthy my whole life. it doesn't work that way. it just happens.

welcome

Thaydrian,

It is great to have you come and be with us. You will find a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Thank you all for the warm welcome and kind words. <3