[dahlia33]

Hello,

My name is Dahlia. I'm 33 y-o, and have been diagnosed with neurological Wilson's disease, it is a genetic disorder which makes the liver unable to excrete copper (which is found in all food and water). Copper is a vital mineral that performs various functions in the body but our bodies only require a certain amount and the liver discards the rest. In my case my liver stored it in my body until it became toxic and attacked my central nervous system. My brain and spinal cord were damaged due to excess copper- as a result, I cannot talk and couldn't walk for 10 years. Today I use a walker to walk.

I am not sad about it... I was in the beginning but I now see my illness as a gift. It allows me to connect with other people and share my experiences on my blog in the hope that it will help other people with neurological disorders.

I was just wondering if Neurotalk had a group on Facebook to better interact and get to know each other ?

Dahlia

[Jomar]

Hello & welcome.
Members share & communicate on the forums here, or with PM messaging.
You can set up email notifications of posts & threads that interest you.
FAQ- http://neurotalk.psychcentral.com/faq.php

[anon1028]

Originally Posted by dahlia33

Hello,

My name is Dahlia. I'm 33 y-o, and have been diagnosed with neurological Wilson's disease, it is a genetic disorder which makes the liver unable to excrete copper (which is found in all food and water). Copper is a vital mineral that performs various functions in the body but our bodies only require a certain amount and the liver discards the rest. In my case my liver stored it in my body until it became toxic and attacked my central nervous system. My brain and spinal cord were damaged due to excess copper- as a result, I cannot talk and couldn't walk for 10 years. Today I use a walker to walk.

I am not sad about it... I was in the beginning but I now see my illness as a gift. It allows me to connect with other people and share my experiences on my blog in the hope that it will help other people with neurological disorders.

I was just wondering if Neurotalk had a group on Facebook to better interact and get to know each other ?

Dahlia

you're so damn brave I can't believe it. Mark here. there's a chat feature on this board. feel free to contact me. **

[Kitt]

Welcome dahlia33.

[Darlene]

Dahlia,

It is great to have youcome and be with us. There are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[dahlia33]

Originally Posted by markneil1212

you're so damn brave I can't believe it. Mark here. there's a chat feature on this board. feel free to contact me. **

Awww thanks Mark

[dahlia33]

Darlene [/COLOR][/SIZE][/FONT][/I][/B][/QUOTE]

Thank you Kitt and Darlene for the warm welcome