Hello pickle,

Welcome to the NeuroTalk Support Groups.

I'm sorry that you're dealing with these symptoms and trying to manage your children and daily life. Hopefully your doctor will find the cause soon.

Were you ill with a virus or sickness before the symptoms began?

Hi Lara, thank you for your reply. I am new to this and it is comforting to have a response.

I did have an infection about 4 weeks before this all began. I got a pretty bad case of mastitis from breastfeeding my baby which took 2 courses of antibiotics to clear. Because of this, guilian barre (sorry prob wrong spelling) was investigated first but ruled out quickly.

Both the GP and nerve specialist weren't able to shed any light on cause but I raised concerns about MS. This has been dismissed as I don't have eye or balance symptoms. I can't shake MS from my mind though. I guess we always want to try and find a name to help us cope.

Also, I forgot to mention that since this began I've had terrible night sweats, only on chest and neck, and also a burning sensation in both palms. Symptoms seem to worsen with fatigue, ie when baby isn't sleeping well and I'm up through the nights.

I would love to hear from anyone else who has similar symptoms, not that I'd wish this on anyone! Or any suggestions on forum groups that fit my oddness.

Thank you

What antibiotics did you take? Some of them cause nerve damage (neuropathy).

Fluoroquinolones like Cipro, Avelox and Levaquin.
Flagyl (metronidazole)
Tindamax (related to metronidazole)
And Zyvox (last resort for mrsA.)

It may not be connected, but if you had the bacterial infection prior to the onset of these varied symptoms, I wonder if your GP hasn't suggest a Rheumatologist rather than a Neurologist. [The night sweats and the joint pains]. I think there are several types of bacteria that can cause mastitis and maybe it wasn't totally cleared from your body.

No rash or fever or light sensitivity or anything like that now?
It's the joint pains that would concern me.

Welcome Pickle.

You could check out the Fibromyalgia Forum

Not sure how long ago you had your last baby, but postpartum joint pain in particular is not uncommon. Sleep deprivation wouldn't help you either.

New mothers are prone to lower thyroid functions too. Need to get that checked.

Another thing is that some nutrients get depleted by pregnancy and nursing. EFAs like DHA are needed by babies for their brain and spinal cords...so mothers may get low in them.

There are supplements especially made for new mothers... one is called Expecta... and supplies DHA made from algae and not fish.

Another nutrient that needs to be checked is B12. This should be a minimum of 400pg/ml in testing. And also Vit D3. Have this checked as well.