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Old 02-06-2007, 04:33 PM #1
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Confused Frances
Hi, I'm A 42 Year Old Mother Of Two Boys. I Have Neurofibromatosis.i Have Been Married For 24years. I'm New To All This. I Would Like To Talk To Other People With Nf1 As I Don't Know Anyother Person With Nf1 To Talk To.
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Old 02-06-2007, 04:57 PM #2
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Hi Frances and welcome to the forum. I'm sorry for your diagnosis, but glad you found us.
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Old 02-06-2007, 05:01 PM #3
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Welcome Frances! I don't know where to direct you but this place is filled with people who care. When were you dxed?
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Old 02-06-2007, 05:09 PM #4
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Hi Frances and a very special welcome to you
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Old 02-06-2007, 05:10 PM #5
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Hi Frances,

Welcome to Neurotalk. I am glad you found us, everyone here is great and very supportive.
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Old 02-06-2007, 05:26 PM #6
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Welcome Frances
I just joined the forum a couple weeks ago and have learned a lot from the great folks here and found some great information resources.
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Old 02-06-2007, 06:58 PM #7
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hi Frances. My daughter has NF, too.

you can find a lot of support at the Children's Tumor Foundation website (used to be the national NF foundation). www.ctf.org

there's a great bulletin board there, lots of NF folks of all ages.
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Old 04-16-2008, 02:08 PM #8
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Default I have NF1 so do my 2 children
You can talk to me anytime. I am also new to this board. I have NF1. My so is going througha realy rough time right now with the NF..
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Originally Posted by frances View Post
Hi, I'm A 42 Year Old Mother Of Two Boys. I Have Neurofibromatosis.i Have Been Married For 24years. I'm New To All This. I Would Like To Talk To Other People With Nf1 As I Don't Know Anyother Person With Nf1 To Talk To.
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Old 04-16-2008, 06:54 PM #9
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Hello Frances.

It's so sorry to hear of your NF. Unfortunately I don't know much about the condition myself, but we have lots of wonderful people here on NeuroTalk, and maybe you'll find some who are more informed than I.

In the meantime, have a good look around the site, and get to know some of our members. Hopefully you'll achieve the support that you're seeking.

Don't be shy, I'm sure you'll fit right in


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