The real question is--where are you located?

We might be able to give you some idea of good places to go for further evaluation/testing and possible treatment if you let us know; there are specific medical centers and facilities that specialize in neuropathy.

Your nerve conduction studies and EMG are consistent with possible tarsal tunnel syndrome, but they are also consistent with a more systemic sensory neuropathy with distal "die back", meaning the longer nerve fibers, farther from the center of the body, are affected first. Have you had other work-ups for more systemic causes? Imaging of the lumbar spine area (which, given that you teach PE, makes me suspicious that you may have issues in that area)?

Not only should you visit our neuropathy forum here--lots of good information and advice:

http://neurotalk.psychcentral.com/forum20.html

You should also compare the work-up you have had so far with these listings. Neural symptoms form peripheral problems can be exactly mimicked by those of the spinal cord or nerve roots, so teasing out a cause is often long, costly, and very much process of elimination:

www.lizajane.org

http://www.questdiagnostics.com/test...ripheralNeurop

I tried to submit. I got an error message. It stated, "The message you have entered is too short. Please lengthen your message to at least 10 characters." My thoughts are inserted below (edit – I stopped with that method).

I guess the program does not like it when one does that. Suggestions for further posts to avoid this problem? Thanks.

Attempt to post number two: Now I got this message:
To be able to post links or images your post count must be 10 or greater. You currently have 1 posts.
Please remove links from your message, then you will be able to submit your post.

I live in Junction City, Kansas. A small town of about 30k with horrible healthcare. However, I'm only 2 hours from larger cities - KC area/Wichita/Topeka, etc.

The people that I have seen 'specialize in', 'there is nothing we can do. There is nothing wrong with you. Bilateral TTS is rare' ('BULL!' says Dean and his MD brother) . . .therefore, you don't have it."

"So . . . what do I have then?"

"Don't know . . . sorry. I cannot help you."

Inexcusable. At least refer me to someone who can.

Just blood work (see below sig/never mind/can't find blood work at the moment - neurologist ordered this blood work - I called him back to say I still have symptoms . . . no return call . . .no follow up . . . I called again a week later . . . the same thing). No big red flags on the blood work they did but given their 'skills' in this area . . . they probably provided me with blood work that was of little value for my problem.'

I told them my back rarely hurts (which is true) so they did not image it.
Thank you for the links below. I will look into them after Christmas.

Thank you for you time, concern and info.

I am very appreciative.

I imagine insurance will be problematic. I have health care insurance . . . but you know the deal . . . if possible to get my previous life-style back through PROPER treatment (or, even half of it back) I guess I can cash in my 401 IRA . . . but it is only worth $30K so that wouldn't get me very far down the DX road . . .

Thanks again,

Dean

Hi
the forum software is programmed to prevent links by new members as that is part of the anti-spam measures.

The only time you would get a "post too short" notification is if all your post contains is a few characters of text.

Welcome canifindagooddr.

Dean,

Hello and welcome, happy to see you have come to be with us, it a great place to be. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene