[Princessmorticia]

Hello!
I am SO incredibly happy to have found this community & others who are in a similar situation to me - I didn't think I would ever find such a place!!
I live in Australia and my injury was a severed spinal accessory nerve, which occurred during a routine 2-pass 16 gauge cervical lymph node core biopsy in October 2012.
In January 2013 I had a surgical repair (glue & stitch) of the neuroma which was unsuccessful.
I have CRPS, left shoulder weakness, left arm abduction of only 20-30 degrees, trapezius muscle wastage, head/neck/shoulder/arm nerve pain 24/7.
Am currently taking Lyrica, Targin and Oxynorm along with paracetamol and am also in counselling with antidepressants starting today.
My case is going to court at some stage in my life!!
I was told today that I have a permanent disability with no chance of recovery.
The last specialist I saw for a medico-legal opinion suggested the Eden-Lange Procedure for me and I am only just researching it now - it's all SO scary I don't really know what I'm doing.
Thank you for listening, I really am so emotional to have found you all and I hope that there are others of you like me out there that I can talk with and find out more about your treatments and possible help for myself along the way.
Thank you so much!
Princessmorticia [Sarah]

[Kitt]

Welcome Princessmorticia.

[Lara]

Hi Sarah,
Welcome to the NeuroTalk Support Groups.
I'm really sorry to read what has happened to you and I hope you find some support and information here.

There are a number of older posts that might be helpful for you if you do a full forum search for
'Eden-Lange Procedure' and also for 'Spinal Accessory Nerve'.

Spinal Disorders and Back Pain Forum

I see you've posted in General Health Conditions. You might also try posting in the
Thoracic Outlet Syndrome/Brachial Plexopathy Forum
Some of the members there might have some information for you as well.

Reflex Sympathetic Dystrophy (RSD and CRPS) Forum

[Darlene]

Sarah,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[Princessmorticia]

Originally Posted by Kitt

Welcome Princessmorticia.

Thank you Kitt 😊

[Princessmorticia]

Lara thank you SO much for your reply - I will check out the areas here you suggested. I really appreciate it!
Sarah 👧💜

[Princessmorticia]

Thank you very much for the lovely welcome Darlene! I'm not sure where to post yet but I will have a look at Lara's suggestions and see how I go!
Thanks again, sarah 👧💜