I was diagnosed with thoracic outlet syndrome with effort thrombosis about 2 months ago. I was working out and felt like my arm muscles ripped. After that, my arm became swollen and would turn blue when it wasn't elevated.
I waited a few days then went to urgent care and had an ultrasound which confirmed I had 2 blood clots in my upper arm/neck. I was admitted to the hospital and told I have TOS and would need surgery.
I just had the first rib resection surgery last Thursday and spent 3 nights in the hospital. Now I'm at home trying to recover. I still have lots of pain, numbness and not very much range of motion. Has anyone else had this surgery? Just wondering what to expect as far as recovery and if anyone has any tips for me? I've been trying to do stretches I've learned in PT, but I'm still in so much pain. I'm trying to stay positive, but it has been difficult. Its hard because none of my family or friends have even heard of TOS. I'd love to hear from others who have TOS and their experiences, this is still all so new to me.
Thanks,
Lisha

Hello Lisha,

Welcome to the NeuroTalk Support Groups.

You might like to repost over on the Thoracic Outlet Syndrome Forum

Some of the members who have TOS may not visit the new members forum. [Lots in the Info threads at the top of the forum as well.]

All the best to you with your recovery post op!

Lisha,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Welcome, Lisha. I wish you well soon.

Welcome Lisha.

Thank you all for making me feel so welcomed! Just taking it easy, I keep telling myself ever day will get better.

Lisha