Hello all,

My name is Deb and I seem to have a severe case of neuropathy. This is the most horrible thing I have ever had to deal with and I guess I am just looking for any kind of information I can get so that I can get some kind of hold on this. Am I making any sense? I don't know what questions to ask, or what else I could be doing to find some relief. I will say that this started 6months ago, toward the end of July. The pain is mostly in my midsection, horrible burning pain, and sometimes in my legs. I have lost all of my muscles, even the muscles that help me to cough and sneeze, and for a short time thought I was literally dying. My life the way I knew it has all but ended. This all started after I was misdiagnosed as a type 1 diabetic and had a reaction to the insulin. I am actually a type 2 and only needed to be on metformin. I stopped taking the insulin after three months, but the damage had already been done. It seems to me that doctors do not know very much about this horrible condition. I finally had to take a short term disability hoping I would get better, but I don't seem to be getting any better. Any information will be very much appreciated. Thanks.

Hello Debbie,

Welcome to the NeuroTalk Support Groups.

I'm really sorry you're in so much pain. I am sure you'll be able to find support and information here.

There is a
Peripheral Neuropathy Forum

PN Tips, Resources, Supplements & Other Treatments

Diabetes / Insulin Resistance / Metabolic Syndrome Forum

At the top of all the forums are "Sticky" threads. They contain useful information as well as websites and other resources.

You could also try doing a full forum search for specific keywords.
I just did one for "muscle wasting" and it brought up quite a number in the PN forum.

http://neurotalk.psychcentral.com/search.php - Full Forum Search

Welcome desertdeb720.

Welcome, Deb. So sorry about the misdiagnosis. I hope you are better soon.

Deb,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Aloha Deb... I am new here too and find it amazing and full of good info, understanding and hope. I've had PN in my feet for 20yr and told very few people. Suffer in silence. Folks just don't understand unless they got it. yea... walk a mile in my shoes So sorry about the misdiagnosis. Imua kakou. aka we all move forward together ...