My name is Beth, New here.
Although I am not really new to the symptoms, I am possibly in the process of actually being diagnosed. My symptoms started after a series of events. I had a horse accident,( head trauma) then got a hep b vaccine,( loss of arm movements for a extended period of time, followed by double vision and blurry vision off and on) then had a minor heat stroke ( causing nose bleeds since, with all the other symptoms still in tact. )

Was hospitalized about a week ago and had mri both contrast and without and drs found increased T2/FLAIR signal involving the left optic nerve, scattered foci of T2 and FLAIR hyperintensities involving the peri- ventricular and subcortical white matter, which is non specific but may be related to chronic small vessel ischemic changes, demyelinating disease, post trauma, or
vasculitis, and partially empty sella? Which then I got a spine tap to check for MS. Ms panel came back negative but not sure what everything means yet due to neurology apt isn't until 6th of march.

Still have odd sight issues and have to wear sunglasses to offset glare. Its been a nightmare trying to figure out what I have, how to fix it and or treat it.

Hi Beth,

Welcome to the NeuroTalk Support Groups.

I see you've found the Autoimmune forum already but just wanted to say hello. I hope you find the information and support that you need and hopefully you'll get some definitive answers when you see the Neurologist on March 6.

Do you think any of your symptoms are due to your head injury??

I think most the symptoms are due to the head injury. I think due to the injury and getting vaccine ( meds) to soon after an injury less than 2 weeks might have caused alot of my issues. The initial injury I imagine I should have waited longer to get the meds/immunization maybe? But I was working for an er department then and just went ahead and did it. Since its been a struggle. I didn't know I was supposed to wait after a head injury. The head injury consisted of being knocked against a brick wall by a draft horse . Diagnosis then was just concussion. Which later went to concussion syndrome.

Drs think its a mix of both as well. However due to length of time with all the overall variables which all happened within a month to 2 month period its very hard to pin point.

With the Mri results it points at a auto immune issue . Drs in the hospital said they were almost positive it was ms but the ms panel came back neg. Not sure if people have had that happen and later be diagnosed with ms or some other form of auto immune issue that mimics ms?

Thankyou for the welcome. It is much appreciated.

Ouch. That sounds as if it was a terrible knock.

Check out the Traumatic Brain Injury & Post Concussion Syndrome Forum

Honestly I'd post there too. There are heaps of info posts in the Sticky threads at the top of the forums too. There may even be some posts that are helpful regarding hormonal changes after TBI. The eyesight problem is familiar to me as well (had PCS myself although pretty well recovered apart from residual vertigo and some other issues).

see you there.

Regarding the MS panel. I think that does happen, yes.
You could ask over there as well. They're a lovely group and would be very welcoming I'm sure.
Multiple Sclerosis Forum

Welcome SkimbleShanks.

So sorry you are having these issues, with no firm diagnosis yet to suggest a proper treatment plan for you.

This is a long shot, but the symptoms you experienced after the vaccine caught my attention. I know of another NT member who has suffered with a severe case of thoracic outlet syndrome ("TOS"), which was triggered by a vaccine.

TOS can be extremely difficult to diagnose, as it mimics the symptoms of several other pain disorders and very few doctors choose to specialize in it. NT does have a TOS forum, which you can find by scrolling down through the alphabetical listings of neurological illnesses (I'd throw the link up here for you if I knew how to do that!).

There's a wealth of info captured in the "sticky" threads at the top of the first page of that forum, or you might want to just read through some of the posts to see if anything resonates with you.

Hope you start to find some real answers soon. I wish you lots of luck!