Hi everyone,

My name is Sophie and I have arrived here after years of searching for answers about my ongoing headaches/neck pain.

I have been suffering for around 10 years and my doctors haven't yet diagnosed me despite numerous visits.

I have resorted to doing some detective work of my own so I would be SO grateful if you could see if any of your symptoms are similar to mine.

-In the base of my skull where it meets the neck
-Sometimes radiating to ears, throat (occasionally i can feel a related sensation in my nose)
-Intense throbbing, pressure, burning pain
-Base of skull feels swollen and tender
-Sometimes affects hearing - similar sensation to ear popping
-I feel dazed and I don't want to talk

-Period where i have the headaches/neck pain will last roughly 1 week - sometimes 2 weeks
-I can go for months without any symptoms

-Lasting around 5-10 minutes a time
-Come on quickly and escalate to maximum pain within 1 minute
-They come and go roughly 10-20 times a day
-Wake me from my sleep roughly 4 times a night and in the morning
-Ibuprofen / paracetamol / ice help


Thank you so much in advance for reading As I said I would love to hear if anyone has had a similar experience.